In MDA, Destiny found the support and community she needed to live fully as a 12-year-old, as a college student and now as a mom to two kids. That’s why she’s been a passionate Muscle Walk fundraiser for the past 15 years, whether she was well enough to walk in the event or not. That’s why she’ll continue participating.
Longtime MDA Summer Camp volunteer Todd Dewey shares why this will be his 28th summer giving back to the organization he loves.
Theresa Cox is committed in both her professional and personal life to working with people living with muscular dystrophy and related neuromuscular diseases.
As an adult living independently with spinal muscular atrophy (SMA), Joe Akmakjian had to learn to cook for himself with the help of others. “Cooking through the hands of someone else is a talent,” he says.
Do you ever find yourself saying, almost by default, “I’m tired” when someone asks you how you are doing? Jennifer Massey has more reason than most to respond that way. As a manifesting carrier of DMD, she is often fatigued. But she wants to be more mindful of how she talks about her health.
CMT doesn’t hold Nicki back; it pushes her to reach higher. Literally. Read on to follow Nicki on the trek of a lifetime — to the top of Mount Kilimanjaro, the tallest mountain in Africa.
Looking back, neither one of us went to camp expecting to meet the person we’d one day marry. … I can’t imagine my life without Zach. We can’t imagine our lives without our camp family or MDA Summer Camp.
Writer and artist Erin Brady Worsham shares how ALS can affect your relationship with the furry members of your family.
For Ava Illingsowrth there are no barriers. There are no obstacles. For her, challenges are just opportunities to defy limits. Ava is a runner with the MDA’s Team Momentum, MDA’s endurance training team that helps people train for half or full marathons while supporting kids and adults living with muscular dystrophy. Ava herself is one . . .
Mindy Henderson, who has SMA, shares her story of love and loss with one of America’s most popular cosmetics.
