The Ride of Their Life

For the founders of the ALS Bike Trek in Minnesota, the event is so much more than just a ride in the park. Founder Justin Rumley lost his dad, Steve, to ALS in 2009. Rett Landers’s brother, Jim, passed from Lou Gehrig’s disease on Thanksgiving in 2008. And Everett Myers’s father, Victor, died just 26 . . .

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Passion in Action: Connecticut Teen Brings Enthusiasm to the Muscle Walk

Thirteen-year-old Dana Parrott has a live unlimited motto, which she faithfully follows. “I may have muscular dystrophy,” she says. “But muscular dystrophy don’t have me!” In so doing, Dana is showing the world that her limits don’t define her. To every doubter and every “you can’t do that,” she says, “watch me.” Diagnosed with limb-girdle muscular dystrophy (LGMD) . . .

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Indiana Man ‘Muscle Walks’ for the Next Generation

Three-year-old Paxton is the tiny, grinning powerhouse that keeps his grandpa, Stuart Horton, going. His smile gets Stuart out of bed every morning and, even though it’s tough for the 53-year-old with Charcot-Marie-Tooth disease to travel, it’s his grandson’s future that motivates Stuart to participate in MDA Muscle Walk this year. “It’s the simple things . . .

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