National Endurance Program Actively Recruiting Participants for Signature Half / Full Marathon Events this Fall CHICAGO, June 1, 2015 — The Muscular Dystrophy Association is offering an exclusive opportunity for anyone interested in participating in the sold out 2015 Bank of America Chicago and Marine Corps Marathons to secure guaranteed entry by signing up . . .
Barrier-free, weeklong camp for kids with neuromuscular disease offers ‘Awesome Adventures’ CHICAGO, May 20, 2015 – The Muscular Dystrophy Association (MDA) is set to kick off another season of summer camp. Now in its 60th year, MDA summer camp supports families by hosting thousands of kids fighting muscular dystrophy and other life-threatening diseases that severely . . .
PHILADELPHA, May 11, 2015 — Opening weekend at Camelback Lodge and Indoor Waterpark helped bring huge success to the 28th annual MDA Ride for Life event held on May 1-3, which raised more than $1.1 million to benefit families affected by muscular dystrophy and related life-threatening diseases. Located in the heart of the Pocono Mountains, . . .
By Jenny Imhoff Today marks the beginning of a long weekend for many Americans. It’s a time to soak up the last days of summer sun and gather with friends and family. For many Americans, Labor Day weekend also has been synonymous with MDA, thanks to its long-running telethon. My family was very lucky to . . .
MDA is committed to accelerating treatments and cures, using innovative ways to engage new supporters CHICAGO, May 1, 2015 — MDA, the Muscular Dystrophy Association, today announced that the new realities of television viewing and philanthropic giving have made this the right time for the organization to move beyond its historic Labor Day telethon. It . . .
Press Release: BioMarin Completes Rolling NDA Submission to FDA for Drisapersen for Treatment of Duchenne Muscular Dystrophy Amenable to Exon 51 Skipping Statement from MDA Scientific Program Officer Laura Hagerty, Ph.D.: “This is very encouraging news for the DMD community, and we hope it means that a treatment is on the horizon. If drisapersen were to . . .
Stores across the Southwest to raise vital funds through MDA’s summer camp mobile program PHOENIX, April 28, 2015 — More than 260 Western Refining convenience stores, including Giant, Mustang, Sun Dial and Howdy’s, throughout the Southwest will raise money to help the Muscular Dystrophy Association save and improve the lives of kids fighting muscular dystrophy . . .
By Amanda M. Haidet-Phillips, Ph.D., MDA’s ALS Scientific Program Officer Throughout 2014, everyone from celebrities to school children to MDA’s own CEO could be seen dumping ice water over their heads to raise awareness and dollars to fight ALS. It was a phenomenon that shined an urgently-needed spotlight on a disease that steals everyday freedoms . . .
Stores Nationwide Raise More Than $7.5 Million during 2015 Shamrock Program to Help Improve Lives in MDA Communities #MDAshamrocks MDA’s 2015 National Goodwill Ambassador Reagan Imhoff, along with her parents Jenny and Joe, helped spread awareness to Lowe’s employees and customers about the importance of the MDA shamrock and how funds raised through the program . . .
Press Release: Santhera’s Positive Phase III Trial (DELOS) in Patients with Duchenne Muscular Dystrophy Published in The Lancet “This is welcome news for our community,” said MDA Senior Vice President and Scientific Program Director Grace Pavlath, Ph.D. “The need for effective DMD therapies is urgent, and we look forward to the possibility that idebenone may . . .