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Author: MDA Admin

News

MDA Taps Global Health Care Leader as CEO to Leverage New Breakthroughs and Amplify Mission

MDA Admin 10/10/201710/10/2017

“It truly feels as if my entire career path has been leading me to this role,” said Vos. “I am excited to bring my passion for patient care and advocacy, as well as my success using new technology to build new, innovative communication approaches, to lead MDA in the fast-changing world of research and patient care.”

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Personal Stories, Summer Camp, Fundraising & Events

Newly Married Couple Asks for Donations to MDA in Lieu of Wedding Gifts

MDA Admin 10/06/201710/06/2017
Your Way for MDA

In lieu of gifts, the Fosters, who met at MDA Summer Camp, asked wedding guests to make a donation to MDA instead.

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Adults

State Ambassador Who Lives with FA Shares the Only Failure is Not Trying

MDA Admin 09/21/201709/25/2017
Friedreich's ataxia (FA)

Angie Wilkerson, who lives with FA, believes the only failure lies in not giving yourself the chance to try something new.

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Young Adults

Home Care Helps Young Professional with FSHD Live Unlimited

MDA Admin 09/21/2017
SYNERGY HomeCare

Meet Lauren McLane, a young adult living with FSHD who’s exploring her independence with some help from SYNERGY HomeCare.

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Living with Muscular Dystrophy

What is Multifocal Acquired Motor Axonopathy?

MDA Admin 09/12/201709/12/2017

Multifocal acquired motor axonopathy (MAMA) is an extremely rare neuromuscular disease that is often misdiagnosed as ALS (amyotrophic lateral sclerosis) due to similarities in the symptoms that initially occur in affected individuals.

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News

Local Resources for Families Impacted by Hurricane Irma

MDA Admin 09/08/201709/08/2017
Fill the Boot

State specific Hurricane Irma resources for Florida, Georgia, North Carolina and Virginia.

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Fundraising & Events

DMD Mom Runs Half Marathon “For People Who Can’t and to Help People Run as Long as Possible”

MDA Admin 09/07/201709/07/2017
DMD

In recognition of World Duchenne Awareness Day we share our support w all DMD families, including Stacey Hudak and her son Ryan, who lives w DMD.

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News

Top 4 Emergency Preparedness Tips for MDA Families

MDA Admin 09/06/201702/23/2023
Emergency Preparedness

Is your family prepared for a weather-related emergency? In anticipation of extreme weather, we’ve pulled the top four tips your family needs to know:

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Research

Jerry Lewis’ Work Helped Scientists Discover the DMD Gene

MDA Admin 09/03/201709/04/2017
jerry lewis

In October 1986 Jerry Lewis announced the DMD gene had been discovered, a monumental moment in MD research.

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Personal Stories, Adults

Remembering Jerry — and a Long Ride to Meet Him

MDA Admin 09/03/2017
Fill the Boot

Donnie Foster, who lives with CMT, shares his story of trekking from MO to Vegas to meet Jerry Lewis at the telethon.

 

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Muscular Dystrophy Association, Inc.
1016 W Jackson Blvd #1073
Chicago, Illinois 60607
800.572.1717

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