MDA to Host Emflaza Webinar July 6
DMD Families are invited to an Emflaza webinar in partnership with PTC Therapeutics on July 6.
Author: MDA Admin
Former MDA National Ambassador Abbey Umali shares big plans post grad
Recent high school graduate Abbey Umali, a former MDA National Ambassador who lives with CMT, shares her plans for the future.
70 Percent of MDA Families Say They Have Experienced Problems with Accessibility When Traveling by Air [INFOGRAPHIC]
Air travel is essential to being able to live, work or go to school where you choose—and can determine whether someone can see a specialty provider or participate in a clinical trial that is far from home. MDA believes accessto air travel is essential to living unlimited. That’s why we’re working with policy makers, federal agencies, industry, and other advocacy and disability rights organizations to help improve access to air travel for MDA families.
Family impacted by FSHD fights back, one hop at a time
Learn how the Yoken family fights back against FSHD, one hop at a time.
Montana boy first in the state to receive Exondys 51
Trayton, who lives with DMD, is the first boy in Montana to receive the breakthrough DMD treatment Exondys 51
Try not to be inspired by this round-up of Team Momentum stories
Take a look at some of the most heartwarming MDA Team Momentum stories guaranteed to give you all of the feels.
Spinraza Helps Young Woman Participate in Muscle Walk — and She Thinks You Should, Too
Kate, who lives with SMA type 3 and has directly benefited from, Spinraza, a medication that can trace its root back to MDA, encourages supporters to go the distance for MDA via their local MDA Muscle Walks.
Questions and Answers about Newly FDA-Approved Radicava to Treat ALS
The U.S. Food and Drug Administration (FDA) on May 5, 2017, approved edaravone (brand name Radicava) for the treatment of ALS (amyotrophic lateral sclerosis). Radicava is the first ALS treatment to be approved in the United States in more than 20 years, and is only the second drug ever approved to treat this devastating disease.
Recognizing Contributions of MDA’s Greatest Champions on International Fire Fighters Day
In honor of International Fire Fighters Day we’d like to thank the incredible fire fighters who go above & beyond to save & improve the lives of so many.
What is Advocacy and Why Should You Care?
In advance of MDA’s first ever Advocacy Conference, taking place April 23-25, we asked several advocates to unpack the idea of advocacy: what is it, why they became advocates and why it is necessary for others to follow their examples. Their responses follow.
