Air travel is essential to being able to live, work or go to school where you choose—and can determine whether someone can see a specialty provider or participate in a clinical trial that is far from home. MDA believes accessto air travel is essential to living unlimited. That’s why we’re working with policy makers, federal agencies, industry, and other advocacy and disability rights organizations to help improve access to air travel for MDA families.
Kate, who lives with SMA type 3 and has directly benefited from, Spinraza, a medication that can trace its root back to MDA, encourages supporters to go the distance for MDA via their local MDA Muscle Walks.
In advance of MDA’s first ever Advocacy Conference, taking place April 23-25, we asked several advocates to unpack the idea of advocacy: what is it, why they became advocates and why it is necessary for others to follow their examples. Their responses follow.