Running for MDA Families is How I #LiveUnlimited

Living unlimited is when someone faces a difficult, uncomfortable situation or a “limit” placed on them – by themselves or others — but has the fortitude to defy the limit or move through it. Yesterday, at my visit to one of our 80 MDA Summer Camps, I was reminded again and again how our families face and . . .

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Laughter is the Best Medicine

Earlier this Spring, I had the honor of taking part in the 3rd annual Strength, Science and Stories of Inspiration event at the Harvard Science Center in Cambridge, Massachusetts. As a patient with dysferlinopathy (a form of muscular dystrophy), I was heartened to see every seat in the 500-person auditorium filled to support the mission of finding . . .

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Why I Walk: For Community, Camp and Cures

  Editor’s note: The following is adapted from a letter Stephanie Hoover wrote to family and friends to ask them to support her in the Louisville Muscle Walk. We thought her characterization of the impact of her disease and her eloquent description of the community she has found within MDA were worth sharing. We hope you . . .

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ABLE to Work: Building on the Achieving a Better Life Experience Act of 2014

Data released by the US Department of Labor this month showed that the unemployment rate for people with disabilities is more than double the unemployment rate of those who are considered able bodied. Many factors impact access to employment for those living with disabilities, including a system of benefits and services that are gained and . . .

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MDA Teams Up with LDN to Present 24-Hour Live Online Gaming and Variety Show June 24

This summer, as MDA and our families defy daily challenges together to live unlimited, we’re having a little fun. And on June 24, we’re having a whole lot of it. We’re teaming up with two of Legendary Digital Networks’ top Internet channels – Geek & Sundry, founded by actress Felicia Day, and Smart Girls, founded by Amy Poehler . . .

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Boston Fire IAFF Local 718 & MDA Dedicate Statue in Honor of More than 60 Years of Partnership in the Fight Against Muscular Dystrophy

More than 100 Boston fire fighters and dignitaries, along with the the International Association of Fire Fighters (IAFF),  MDA and Boston Fire IAFF Local 718, united today on Memorial Sunday, an annual day to honor Boston’s fallen fire fighters, to celebrate more than 60 years of partnership in the fight against muscular dystrophy, ALS and . . .

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