The Muscular Dystrophy Association launched a new event series in 2017, MDA Discovery & Impact Events, to bring greater awareness to and educate families and supporters about the progress being made in the neuromuscular disease space.
In recognition of National Disability Employment Awareness Month, Chris and Sean, who both work for Microsoft and live with MD, share what has helped them succeed in their careers.
Bryan Steward, who lives with BMD, shares that he completed his trek on the 500-mile Camino de Santiago.
Elected official Jason Morgan, who lives with BMD, speaks out publicly for the first time about his disease
Ralph Yaniz foudn himself on the cutting edge, literally, of LGMD research when he donated his muscle and skin cells.
Bryan Steward, who lives with Becker muscular dystrophy, set out to hike the 500-mile Camino de Santiago in Northern Spain last month. As he nears the end of his journey, he checked in again with us to update us on his progress. Justin Skeesuck and Patrick Gray, two other Camino hikers whose film I’ll Push You will be released in a one-night only screening at select theaters nationwide on November 2 and will benefit MDA, respond to Bryan’s entries with wisdom from their own journey.
September is #CMTAwareness Month, but do you really know what CMT is and what causes it? Learn more:
Just in time for back to school: updated guides for teachers of students living and learning with neuromuscular diseases
Multifocal acquired motor axonopathy (MAMA) is an extremely rare neuromuscular disease that is often misdiagnosed as ALS (amyotrophic lateral sclerosis) due to similarities in the symptoms that initially occur in affected individuals.
Join MDA on Sept. 14 for a webinar that will explore flu shot resources from the CDC and provide helpful tips for meeting your respiratory equipment needs.
