Siblings Run 10K Together with Help from Team Momentum
Siblings Hugo and Maria Trevino participated in the Chicago Spring Half Marathon and 10K with MDA Team Momentum.
Category: Living with Muscular Dystrophy
Following in her Father’s Footsteps: Daughter Hikes Pacific Crest Trail to Raise Funds for ALS Research
Sophia Spooner will be hiking the Pacific Coast Trail to raise funds for MDA in memory of father, Ray Spooner, who lived with ALS.
Simply Stated: What Are the Symptoms of ALS?
ALS is a disease of the parts of the nervous system that control voluntary muscle movement. In ALS, motor neurons are gradually lost and the muscles they control become weak and then nonfunctional.
Caregivers Give Back: Parents of Son with DMD Offer Advice for Others, Raise Money for MDA
The Moctezumas share how they have become experts at caring for their 25-year old son, Michael, who lives with DMD.
“Don’t Be Sad, OK?”: Family Raises Money for ALS Research to Honor Matriarch
When Jone See, a devoted mother of five and doting grandmother to nine, was diagnosed with ALS in December 2014, her loving family and large group of friends channeled their energy into raising money for a cure through the ALS Bike Trek MN. Jone, who passed away on May 3, won’t be there to cheer the team on in person this year, but her spirit, optimism and hope for a cure lives on.
Simply Stated: What is ALS?
While many have heard of ALS, a much smaller group actually knows what causes it and who it impacts.
A Letter to Mom on Mother’s Day
Chris Anselmo, who lives with Miyoshi Myopathy, shares a letter to his mom and all MDA moms this Mother’s Day.
A Mother’s Powerful Support in the Face of Muscular Dystrophy
Amy Curran shares a heartfelt thank you to her mom, Ann, who has been a rock throughout her and her three siblings’ journeys with GNE Myopathy.
United by Myotonic Dystrophy, a Daughter Honors her Mom on Mother’s Day — and the 25th Anniversary of Her Death
In the decades since Leslie Krongold’s mother died at the age of 56, she has learned that they likely shared a neuromuscular disease — myotonic dystrophy — and, as Leslie approaches her own 56th birthday next year, she feels more committed than ever to defying the odds her my mother couldn’t.
Finding Strength When Weakness Overwhelms: Filmmaker with Mitochondrial Disease Speaks Out to Empower Others
Filmmaker Tom Caamano, who received a surprise diagnosis of mitochondrial disease in 2009, perseveres despite symptoms, which include muscle weakness and fatigue, that threatened to derail his career. Today, he is not only thriving, he’s helping others facing similar diagnoses feel empowered, too.
