Improving Air Travel for People Living with a Disability

Broken wheelchairs. Inaccessible seating. Hard to navigate aircraft. For too many in the neuromuscular community, traveling by air is not accessible. We sat down with Paul Melmeyer, MDA’s VP of Public Policy and Advocacy to hear about his recent appointment to the Air Carrier Access Act Advisory Committee and the Association’s work on accessible air . . .

Read More

Recognizing and Treating CMT in Kids

Like many middle-school kids, 11-year-old Callen, of Emmaus, Pennsylvania, has turned his mom, Jamie Moulthrop, into a chauffeur, she jokes. He participates in karate, baseball, hockey, and surfing, and he meets up often with friends at the pool and splashes around for hours.  Unlike the other kids around him, though, Callen has Charcot-Marie-Tooth disease (CMT), a . . .

Read More

Aging and Neuromuscular Disease Share Symptoms – and Solutions

With age often comes the maturity and grace to accept the world and oneself. That’s a good thing, because it takes every bit of that maturity to differentiate the aging process from the progression of a neuromuscular disease.   Neuromuscular disease comes with certain physical limitations that can also look like aging — loss of strength, . . .

Read More

Dreaming of a good night’s sleep?

More than one-third of adults in the United States fail to get the seven to nine hours of sleep they need, reports the National Sleep Foundation. Children and teens require even more sleep, which too many also miss out on.  Getting quality sleep can be challenging for people with neuromuscular disorders. However, with the right . . .

Read More

It Is OK to Have Mixed Feelings About Resuming Activities After Being Vaccinated

For more than a year we heard these messages: Wash your hands. Wear a mask. Stay six feet apart.  Now, the Centers for Disease Control and Prevention (CDC) says people who are fully vaccinated can resume many of the activities they did before the pandemic. The CDC recommends masks indoors in public for everyone in locales where . . .

Read More

National Connections Program Helps MDA Families Find Others with Shared Experiences

When MDA launched the MDA National Connections program last year, there was no doubt it would be invaluable for fostering relationships, especially during the pandemic.  It didn’t take long to see that the MDA community was eager to build connections, with interest coming from families and people of all ages, from parents of children to individuals . . .

Read More