MDA’s 2018 Clinical Conference is the preeminent gathering of MDA Care Center health care providers and other medical and scientific experts from across the country designed to enhance the communication of new medical advances and information relating to the delivery of best-in-class care for individuals with neuromuscular disease.
In January, MDA launched our first-ever patient experience survey. This tool is designed to provide a statistically accurate snapshot of our community — the people who live with or love someone with neuromuscular diseases – and their needs.
The Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC), a federal committee that oversees newborn screening, voted today to add spinal muscular atrophy (SMA) to the national list of disorders recommended for screening at birth. Following today’s vote, the Secretary of Health and Human Services (HHS) will make a final decision on whether . . .
MDA’s Chairman of the Board Dr. Rodney Howell shares gratitude for the breakthroughs MDA families experienced in 2017 and looks forward to what’s to come in 2018.
With the goal to improve diagnosis and care for people living with Duchenne muscular dystrophy (DMD), the Centers for Disease Control (CDC) today published updated Care Considerations for DMD. The comprehensive set of clinical care recommendations, drafted by a steering committee of experts from a wide range of disciplines with support from MDA, offers care providers guidelines for diagnosing DMD and managing its symptoms.
Acceleron Pharma announced encouraging preliminary results from its phase 2 clinical trial to test the experimental drug ACE-083 in FSHD.
There’s so much in store for the year ahead, and we’re so grateful you’re with us.
Andrew Lieberman of the University of Michigan Medical School was awarded an MDA research grant to test a modified antisense oligonucleotide (ASO) therapy to treat spinal-bulbar muscular atrophy.
In 2017, MDA helped thousands of families live better and longer lives. All of this and much more was possible thanks to you. Thank you for helping MDA make 2017 a remarkable year for the families we serve.
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