An expression of the live unlimited spirit, stories and voices of the MDA community
Zoe Grisez, Age 13 Colorado Springs, CO Home and Family Zoe is the daughter of Mark and Lorraine Grisez. Diagnosis Zoe was diagnosed with SMA Type II in December of 2002. Spinal muscular atrophy (SMA) is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. The age at which . . .
Marley Nibecker Robinson, Age 14 Mystic, CT Home and Family Marley lives with her mother Gabrielle and father Karl. She has an older brother named Cooper and loves all of her pets. Marley has a dog, a rabbit, two ducks, & three chickens. Diagnosis Marley has Spinal Muscular Atrophy II and was diagnosed when she . . .
Jessica Albanese, Age 16 New Castle, DE Home and Family Jessica lives with her parents, younger sister Victoria, and their chocolate lab. Diagnosis Jessica was diagnosed with Limb-Girdle Muscular Dystrophy in 2008 at the MDA clinic at A.I. duPont Hospital in Wilmington. Limb-girdle muscular dystrophy (LGMD) is a group of disorders affecting voluntary muscles, mainly . . .
Manny Gore, Age 5 Brandon, FL Home and Family Manny lives with his parents, Beth and Daniel, and siblings, Jacob, Kaley, Sam, Luke and Zoe. Diagnosis Manny is diagnosed with Merosin Deficient Congenital Muscular Dystrophy. At least 30 different types of Congenital Muscular Dystrophy are now recognized. School Along with his brothers and sisters, Manny . . .
Abigail Lloyd, Age 10 Loganville, GA Home and Family Abigail is the daughter of Jeri and Ryan Lloyd. She has one sister and one brother as well as 2 dogs and a guinea pig. Diagnosis Abigail has Mitochondrial Myopathy. Muscle cells and nerve cells have especially high energy needs, muscular and neurological problems — such . . .
Kyle Eggleston, Age 10 Alpharetta, GA Home and Family Kyle is the son of Debbie and Andrew Eggleston. He is the oldest of three children and has two dogs. Diagnosis Kyle has Duchenne Muscular Dystrophy. In DMD, boys begin to show signs of muscle weakness as early as age 3. The disease gradually weakens the . . .
Marjaneh Shaker, Age 11 Honolulu, HI Home and Family Marjaneh is the daughter of Morad and Marjan Shaker. She is a big sister to Alex and Anahita. Marjaneh is a local girl, born in Honolulu. Diagnosis Marjaneh has Congenital Muscular Dystrophy. CMD is a muscular dystrophy which usually becomes apparent at or near birth. In . . .
Jayden Long, Age 7 Nampa, ID Home and Family Jayden lives at home with his mom and dad, a dog, 3 Koi fish, 1 rainbow shark, and 1 sucker fish. Diagnosis Jayden was diagnosed with Mitochondrial Myopathy at the age of 3, shortly after his younger brother Jaxon passed away. The main problems associated with . . .
Lizzie Chamberlain, Age 12 Jacksonville, IL Home and Family Lizzie is the daughter of Lori and Jeff Chamberlain and is the younger sibling of Corinne (20) and Zachary (15). Diagnosis At the age of 11, Lizzie was diagnosed with Spinal Muscular Atrophy Type 3. Spinal muscular atrophy (SMA) is a genetic disease affecting the part . . .
Noah Tompkins, Age 15 Bloomington, IN Home and Family Noah is the son of Darla and Doug Tompkins. He has two brothers. Diagnosis Noah was diagnosed with Limb-girdle muscular dystrophy (LGMD) in October 2015. Limb-Girdle muscular dystrophy isn’t one disease. It’s a group of disorders affecting voluntary muscles, mainly those around the hips and shoulders. . . .
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