There’s Life With CMT, and There’s Also Everyday Life
Lindsey Baker, who lives with CMT, writes about adjusting to life after the end of a relationship.
Lindsey Baker, who lives with CMT, writes about adjusting to life after the end of a relationship.
Results from an MDA-supported study show that resistance exercise not only is safe, but can help reduce muscle weakness experienced by people with CMT.
Researchers are looking for people with CMT to participate in a phase 2 clinical trial, sponsored by Acceleron Pharma.
New research, supported by MDA and the CMT Association, examines gene therapy in CMT.
Colin Batty will be running with MDA Team Momentum in the Boston Marathon to raise funds in honor of family members who live with CMT.
CMT doesn’t hold Nicki back; it pushes her to reach higher. Literally. Read on to follow Nicki on the trek of a lifetime — to the top of Mount Kilimanjaro, the tallest mountain in Africa.
Written by and for the CMT community, the new book collects the experiences and advice of those living with CMT on subjects ranging from bracing and stretching to employment and transportation.
For Ava Illingsowrth there are no barriers. There are no obstacles. For her, challenges are just opportunities to defy limits. Ava is a runner with the MDA’s Team Momentum, MDA’s endurance training team that helps people train for half or full marathons while supporting kids and adults living with muscular dystrophy. Ava herself is one . . .
Bernadette Scarduzio doesn’t like secrets. Her life is an open book — in fact, now it’s a documentary. But Bernadette and her struggles didn’t start out in the spotlight. Her disease was a secret. Born with Charcot-Marie-Tooth Disease or CMT, an inherited disorder which impacts the nerves in the legs and arms, Bernadette was in . . .
September is Charcot-Marie-Tooth Awareness Month. And this month — this year — I’ve never been more aware of CMT. I was diagnosed when I was 19, after a series of falls and half a semester of college note-taking during which I suddenly couldn’t hold a pen. I couldn’t tie my shoes. I struggled with buttons. . . .