A Look Back at the 2017 Ride for Life
More than 800 Riders + Nearly 1,000 Miles + $1,209,392 Raised = Hope for Kids and Adults with MD, ALS and Related diseases
Strongly
An expression of the live unlimited spirit, stories and voices of the MDA community
MDA to Host Emflaza Webinar July 6
DMD Families are invited to an Emflaza webinar in partnership with PTC Therapeutics on July 6.
The ALS Registry and Me
Alan Alderman who lives with ALS encourages others to join the ALS Registry.
How Having a Disability Helped Me Accept My Sexuality
Hugo Trevino shares insightful observations about the intersectionality of having a disability and accepting your sexual or gender identity — and how having SMA helped him come out and live proudly as a gay man.
Health Care Reform Update: Bill introduced in the U.S. Senate
The U.S. Senate introduced its health care reform bill that sets out changes to modify health care coverage of people across the country, including MDA families.
Inspiration is an Action Word
Doug McCullough often hears that he is inspiring. His response: “OK, thanks. But what have I inspired you to do?”
AMO Pharma’s Myotonic Dystrophy Drug AMO-02 Receives FDA Fast Track Designation
The investigational drug AMO-02 (tideglusib) has received FDA fast track designation for the treatment of DM1.
Former MDA National Ambassador Abbey Umali shares big plans post grad
Recent high school graduate Abbey Umali, a former MDA National Ambassador who lives with CMT, shares her plans for the future.
MDA Community Weighs in on Accessible Air Travel in New Survey Results
At the end of 2016 we asked the MDA community about their experiences with air travel. We received more than 2,000 responses. This is what we found.
70 Percent of MDA Families Say They Have Experienced Problems with Accessibility When Traveling by Air [INFOGRAPHIC]
Air travel is essential to being able to live, work or go to school where you choose—and can determine whether someone can see a specialty provider or participate in a clinical trial that is far from home. MDA believes accessto air travel is essential to living unlimited. That’s why we’re working with policy makers, federal agencies, industry, and other advocacy and disability rights organizations to help improve access to air travel for MDA families.
Need more inspiration?
Sign up for MDA news & updates.
