Kourtney Rivers, Age 13 Severn, MD Home and Family Kourtney lives with her mom Jackie, dad Tom, and their 2 dogs, Ruby and Lily. Diagnosis Kourtney was diagnosed when she was a year old with Myotonic Muscular Dystrophy, a form of muscular dystrophy that affects muscles and many other organs in the body. MMD causes . . .
David Corley Jr., Age 12 Plymouth, MA Home and Family David lives with his mom, grandparents and younger sister Chloe. Diagnosis David is affected by Charcot Marie Tooth (CMT), a genetic neurological disorder that causes damage to his peripheral nerves – tracts of nerve cell fibers that connect his brain and spinal cord to muscles . . .
Matthew Bishop, Age 12 New Lothrop, MI Home and Family Matt lives with his parents, Colleen and Thomas, and his younger sister, Emma. The family also has a yellow lab named Molly and a cat named Sylvie. Diagnosis When Matt was 7, he was diagnosed with Friedreich’s Ataxia by the MDA Clinic at Children’s Hospital . . .
Donovan Carlson, Age 16 Woodbury, MN Home and Family Donovan lives with his mom Jenny, brother, Levi and service dog Buffy. Diagnosis Donovan was diagnosed with Duchenne Muscular Dystrophy at age 5. Duchenne muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle degeneration and weakness. DMD is caused by an absence of dystrophin, . . .
Lauren Becvar, Age 17 Cary, NC Home and Family Lauren lives with her parents and 15 year old brother. Diagnosis Lauren is living with Myasthenia gravis (MG), which is an autoimmune disease — a disease that occurs when the immune system attacks the body’s own tissues. In MG, that attack interrupts the connection between nerve . . .
Addison Schwab, Age 6 Lisbon, ND Home and Family Addison is the son of Cliff and Damien Howey. He has 1 brother, Ethan who is 13 and 1 sister, Emma who is 17. He also has a dog and 2 cats. Diagnosis Addison was diagnosed with Duchenne Muscular Dystrophy in March of 2010. DMD is . . .
Dillon & Tyler Peters, Ages 11 & 9 Oklahoma Home and Family Dillon and Tyler live with their Mom, Melissa and stepdad Jason. Diagnosis Dillon and Tyler have Duchenne muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle degeneration and weakness. DMD is caused by an absence of dystrophin, a protein that helps . . .
Christal Cook, Age 16 Las Vegas, NV Home and Family Christal has three sisters and two brothers. Diagnosis Christal has Duchenne muscular dystrophy (DMD), a genetic disorder characterized by progressive muscle degeneration and weakness. This disease primarily affects boys, but in rare cases it can affect girls. Christal was diagnosed at the age of 12 . . .
David Shortlidge, Age 6 Derry, NH Home and Family David lives with his parents and 4 year old sister. He has two pets at home; a cat named Bodie and a fish named Nemo. Diagnosis David was diagnosed with Duchenne muscular dystrophy when he was 3 years old. DMD is a genetic disorder characterized by . . .
Liam Rust, Age 12 Sparta, NJ Home and Family Liam lives with his sister Emma, and parents Laura and Bill Rust along with his cats and dogs. Diagnosis Liam is diagnosed with Spinal muscular atrophy (SMA). It is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. The age . . .