An expression of the live unlimited spirit, stories and voices of the MDA community
Dr. Eric Shoubridge of McGill University in Montreal, Québec, who was awarded an MDA research grant totaling $287,169 over three years to study a new mitochondrial gene linked to ALS.
Today the House passed the AHCA, which contains provisions that will impact the health care coverage of individuals and families that MDA serves.
In honor of International Fire Fighters Day we’d like to thank the incredible fire fighters who go above & beyond to save & improve the lives of so many.
The deafening roar of thousands of motorcycles is music to Julie Harris’s ears. To her, that rumble means one thing: “Hope.” This weekend, the Reading Fairgrounds in Eastern Pennsylvania will be filled with Julie’s favorite sounds. That’s because the 30th Annual MDA Ride for Life is speeding into town.
Despite the progress in the quest for treatments and cures, individuals living with the life-threatening diseases that newly approved drugs treat are facing a new challenge — gaining access to the approved therapies. Today, some individuals and families are unable to access FDA approved therapies, which can significantly impact the health and life of the person denied access. Not having access to appropriate therapies is unacceptable. A treatment cannot change the lives of families and individuals if they do not have access to it.
In MDA, Destiny found the support and community she needed to live fully as a 12-year-old, as a college student and now as a mom to two kids. That’s why she’s been a passionate Muscle Walk fundraiser for the past 15 years, whether she was well enough to walk in the event or not. That’s why she’ll continue participating.
A delegation of dozens of MDA advocates from 23 states visited more than 100 congressional offices on Capitol Hill earlier this week to speak to their representatives about the importance of programs and policies that help accelerate the development of treatments and cures for individuals and families living with muscular dystrophy, ALS and related neuromuscular diseases.
Nearly forty-five years ago, after John and Lois Washburn’s two eldest children were diagnosed with spinal muscular atrophy (SMA), the couple began volunteering with MDA and haven’t looked back.
Longtime MDA Summer Camp volunteer Todd Dewey shares why this will be his 28th summer giving back to the organization he loves.
Theresa Cox is committed in both her professional and personal life to working with people living with muscular dystrophy and related neuromuscular diseases.
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