Trial to Study Home-Based ALS Testing Seeks Participants
Researchers are looking for 220 people with ALS and 30 people who do not have ALS from around the country to participate in the ALS At HOME study.
Strongly
An expression of the live unlimited spirit, stories and voices of the MDA community
Devoted MDA Summer Camp Counselor Throws Annual Birthday Bash for MDA
What’s better than an over the top birthday celebration? An over the top birthday extravaganza that raises funds for MDA Summer Camp.
Singing a Happy Tune: Meet Shamrockstar Jordy, an Aspiring Musician who Loves MDA Summer Camp
MDA Shamrockstar Jordy shares the importance of MDA Shamrocks, what he wants to be when he grows up and why he loves attending MDA Summer Camp.
ReveraGen BioPharma’s DMD Drug Vamorolone Gets FDA Fast Track Designation
Vamorolone (formerly VBP15), under development by ReveraGen BioPharma, has received FDA Fast Track designation for the treatment of DMD.
FDA Gives Akashi Green Light to Resume Clinical Development of DMD Drug HT-100
Akashi Therapeutics announced that the FDA has cleared the way for the company to resume clinical development of HT-100 in boys with DMD.
Of Mice and Scientists: Joe Akmakjian Reports from the 2017 MDA Scientific Conference
National Ambassador Joe Akmakjian recently attended the 2017 MDA Scientific Conference. He writes, “I found the conference to be very hopeful and exciting experience. It was an honor to meet the people who have made a career out of saving my life and the lives of the other individuals and families. Everyone connected to MDA should be excited to know that these researchers are actively sharing ideas and discussing ways to solve problems and find the solutions we’re all looking for.”
Unplugged
Do you ever find yourself saying, almost by default, “I’m tired” when someone asks you how you are doing? Jennifer Massey has more reason than most to respond that way. As a manifesting carrier of DMD, she is often fatigued. But she wants to be more mindful of how she talks about her health.
A Future Built on MDA Research: Meet Garin, the Budding Architect Shamrockstar
Thirteen-year-old Garin, who lives with DMD, has a positive attitude that helps his family give him the best life possible. That includes one day becoming an architect who designs buildings for people who use wheelchairs. But first: MDA Summer Camp!
Researchers and MDA Speak Out on Capitol Hill Today
Researchers from leading institutions around the country and MDA are visiting Capitol Hill to urge Congress to enact sustained and robust funding increases for the National Institutes of Health (NIH).
A Deep Dive into the Science of Neuromuscular Diseases: MDA’s Scientific Conference Brings Researchers Together to Share Ideas, Talk Shop
Over 500 of the sharpest minds in research have gathered at MDA’s Scientific Conference as they work to unlock the secrets of neuromuscular diseases.
Need more inspiration?
Sign up for MDA news & updates.
