An expression of the live unlimited spirit, stories and voices of the MDA community
Written by and for the CMT community, the new book collects the experiences and advice of those living with CMT on subjects ranging from bracing and stretching to employment and transportation.
Researchers are looking for people with facioscapulohumeral muscular dystrophy (FSHD) to participate in a phase 2 clinical trial, being conducted by Acceleron Pharma, to test the investigational drug ACE-083.
Tammy Carroll, whose daughter Alexas as SMA type 2, shares the importance of birthdays and the FDA’s approval of Spinraza
When I was asked to continue in my role as National Ambassador for MDA in 2017, I had to think about it for about a nanosecond before I gave my answer. Yes, of course! So it’s official: I’ve re-upped for another tour. 2016 will be a hard act to follow, but now that I’m a registered frequent flyer and have a year of ambassadorship under my belt, I can’t wait to try to top it. In fact, I’ve taken the liberty of compiling a list of experiences I’m looking forward to in 2017. Join me, won’t you?
On Dec. 23, 2016 the FDA approved Spinraza for the treatment of SMA. In clinical trials to test Spinraza, participants who received treatment with the drug experienced life-changing outcomes they wouldn’t have been expected to achieve.
Strength, Science, and Stories of Inspiration (SSSI) and the Muscular Dystrophy Association (MDA) announced a new research funding mechanism for graduate students and postdoctoral trainees working in the muscle disease field.
The Muscular Dystrophy Association is pleased to announce the award of a clinical research network grant totaling $918,000 over three years to spur advances in myotonic dystrophy (DM) research.
Last week, MDA’s Mobility Equipment Webinar explored how to find the right mobility equipment to meet the needs of individuals and families living with neuromuscular diseases.
Writer and artist Erin Brady Worsham shares how ALS can affect your relationship with the furry members of your family.
International Day of Acceptance is a day when people all over the world vow publicly to accept and embrace their challenges and support others no matter their abilities.
Sign up for MDA news & updates.
