An expression of the live unlimited spirit, stories and voices of the MDA community
2017 MDA Muscle Walk t-shirt design voting is now live! Now’s your chance to cast your vote for your favorite design for the 2017 MDA Muscle Walk t-shirt! Voting ends midnight on Friday, September 16. Ask your family and friends to vote for their favorite design to help push your selection to the top! The . . .
In 1986, the International Association of Firefighters completed a permanent tribute to its members, the IAFF Fallen Firefighter Memorial, located in Colorado Springs, Colorado. The Memorial was founded to recognize and honor past and future professional firefighters and emergency medical personnel who are killed in the line of duty and to provide assistance to the . . .
Henry Houlden, professor of neurology at the MRC Centre for Neuromuscular Diseases, University College London Institute of Neurology in England, was awarded an MDA research grant totaling $288,151 over three years to elucidate the genetic causes of severe forms of Charcot-Marie-Tooth disease (CMT) and other types of early-onset neuropathy. Identification of the causative genes could . . .
MDA is pleased to announce that we have launched a new MDA National Resource Center that is now available to provide families one-on-one support from trained specialists. You can contact our MDA specialists at resourcecenter@mdausa.org and 1-833-ASK-MDA1 (1-833-275-6321) for resources and support. Specialists are available Monday through Friday 8 a.m. to 5:30 p.m. CST and are . . .
On March 6, 2016, a bomb went off in my life. Its name was ALS. I had vaguely heard of ALS by way of YouTube “Ice Bucket Challenge” videoes. But that day, the most important person in my life, my Dad, Dr. John J. Hutton, was given, as he termed in, “a death sentence.” He . . .
I don’t know about you, my ALS brothers and sisters, but there have been times during my ALS sojourn when I have needed a real laugh to chase the blues away … But at some point, when speaking and breathing became more of an effort, I lost the ability to laugh. I, who had spent . . .
Over the last six decades, MDA has committed $1 billion to research designed to move the world closer to treatments and cures for muscular dystrophy, ALS and related life-threatening diseases. As a result, MDA’s fingerprints are on nearly every major neuromuscular disease research breakthrough, and the progress we continue to see in the field is . . .
Rachelle Crosbie-Watson, professor and vice-chair of graduate education at the University of California Los Angeles, was awarded an MDA research grant this summer totaling $300,000 over a period of three years to test new therapies for cardiomyopathy (heart muscle weakness) associated with Duchenne muscular dystrophy (DMD). Can you tell us a little bit about your . . .
I was warned. Yes, upon accepting the invitation to speak at the National Association of Letter Carriers convention in Los Angeles, I was told to prepare myself. Everyone said that NALC members are some of the MDA’s most enthusiastic supporters. And they were right. But I already knew what I was in for. The NALC . . .
This weekend, as you head out to BBQs and the beach, there’s a good chance you’ll encounter fire fighters collecting for MDA at intersections, shopping malls and town centers in your community. That’s because members of more than 700 local fire departments across the country, led by the International Association of Fire Fighters, are set . . .
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