Strongly


An expression of the live unlimited spirit, stories and voices of the MDA community

Meet the Shamrockstars 2016: Seth

It’s the final week of MDA Shamrocks sales, and Lowe’s and many other retailers across the country still have Shamrocks available. As we head into the final days of the 2016 MDA Shamrock season, please continue to encourage your friends and family to support MDA by purchasing Shamrocks wherever they are sold. And don’t forget to . . .

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Five Questions with Researcher Antoni Barrientos

Antoni Barrientos, professor of neurology and of biochemistry and molecular biology at the University of Miami Miller School of Medicine in Miami, Fla., was awarded an MDA research grant totaling $300,000 over a period of three years to address a knowledge gap about mitochondrial protein complex assembly defects, which are a frequent cause of inherited . . .

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$3 Million NIH Grant Propels Vamorolone to Phase 2 Testing for Treatment of DMD

ReveraGen BioPharma has announced that it has received a $3 million grant from the National Institute of Neurological Disorders and Stroke (NINDS) of the National Institutes of Health to conduct phase 2 clinical trials of vamorolone (previously VBP15) in boys with Duchenne muscular dystrophy (DMD). Vamorolone, a “dissociative steroid,” is an anti-inflammatory compound. Researchers hope . . .

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Bikers, Fire Fighters and Shamrocks (Oh My!): A Trip Report from Florida

One of the best parts of being MDA’s National Goodwill Ambassador is getting to travel the country to places I’ve never been before. Visiting Daytona Beach, Florida, to attend Harley-Davidson’s legendary Bike Week allowed me to indulge my deep love of warm weather, palm trees and beach-side al fresco dining. As a Colorado resident, I’m . . .

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2016 MDA Clinical Conference: Caring for Kids and Adults from Day One

During the last few years, we have witnessed unprecedented progress fueled by an astounding volume of research and improvements in care for kids and adults with muscular dystrophy, ALS and related muscle-debilitating diseases that take away strength and mobility. I have been working in the neuromuscular community for more than 15 years, and I am energized . . .

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Raise Awareness at the 3rd Annual Strength, Science and Stories of Inspiration Event

    Harvard/MIT scientists and partners are set to spread awareness about neuromuscular diseases in the greater Boston area at the 3rd Annual Strength, Science and Stories of Inspiration (SSSI) 2016. Attend the event, where key stakeholders will come together and facilitate new relationships to accelerate progress toward treatments and cures. In addition, hear about . . .

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