Personal Stories Archives - Page 8 of 8 - Muscular Dystrophy Association

Hiker with BMD Checks in from the Camino de Santiago

Bryan Steward 09/22/2017

Bryan Steward, who lives with Becker muscular dystrophy, set out to hike the 500-mile Camino de Santiago in Northern Spain last month. As he nears the end of his journey, he checked in again with us to update us on his progress. Justin Skeesuck and Patrick Gray, two other Camino hikers whose film I’ll Push You will be released in a one-night only screening at select theaters nationwide on November 2 and will benefit MDA, respond to Bryan’s entries with wisdom from their own journey.

Personal Stories

Remembering Jerry — and a Long Ride to Meet Him

MDA Admin 09/03/2017

Donnie Foster, who lives with CMT, shares his story of trekking from MO to Vegas to meet Jerry Lewis at the telethon.

Personal Stories

With One Finger, AJ Brockman Paints the World

Chris Anselmo 08/31/201708/31/2017

AJ Brockman, an artist who lives with SMA, uses only the index finger on his left hand to create works of art.

Personal Stories

Paul thought muscular dystrophy meant putting his dreams on hold. Now he is living unlimited and saying “Watch me!”

Lindsey Baker 07/14/201603/16/2018

Paul Robertson can tell you how falling down can change the course of your life, twice—for worse and for better. For many years, he experienced a series of trips and stumbles, small difficulties getting around and a propensity to catch his feet and toes. His sister Nicole, 11 years younger, had similar tendencies. Maybe they . . .

Personal Stories

Some said he couldn’t play sports. Ethan Lybrand said “Watch me!”

Stephanie Hlywak 07/14/201601/16/2020

The Lybrand family motto is “finish strong,” which, for them, means never giving up and always turning can’ts into cans. It’s no wonder, then, that the youngest Lybrand, 6-year-old Ethan, is a living embodiment of the Live Unlimited spirit. Just three days before his second birthday, Ethan was diagnosed with Duchenne muscular dystrophy. Although the deadly disease will gradually . . .

Personal Stories

Some said Jimmy would never have a shot at love. He said, “Watch me!”

Stephanie Hlywak 07/13/201609/13/2017

Jimmy Valdes had a lot of things going for him: a good job, family and friends who loved and cared for him, and an optimistic outlook on life. But he had his challenges, too. Diagnosed with spinal muscular atrophy when he was 4 years old, Jimmy says he thought that one milestone in many people’s . . .

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Category: Personal Stories

Hiker with BMD Checks in from the Camino de Santiago

Remembering Jerry — and a Long Ride to Meet Him

With One Finger, AJ Brockman Paints the World

Paul thought muscular dystrophy meant putting his dreams on hold. Now he is living unlimited and saying “Watch me!”

Some said he couldn’t play sports. Ethan Lybrand said “Watch me!”

Some said Jimmy would never have a shot at love. He said, “Watch me!”

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