70 Percent of MDA Families Say They Have Experienced Problems with Accessibility When Traveling by Air [INFOGRAPHIC]

Air travel is essential to being able to live, work or go to school where you choose—and can determine whether someone can see a specialty provider or participate in a clinical trial that is far from home. MDA believes accessto air travel is essential to living unlimited. That’s why we’re working with policy makers, federal agencies, industry, and other advocacy and disability rights organizations to help improve access to air travel for MDA families.

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ALS May Run in Catherine’s Family, But So Does Strength and Optimism

ALS

A typical day is anything but for Catherine Scott. She fills her time creating weekly dinner menus and recipes, making to-do lists for her kids, doing advocacy work, and working on a book and a new blog. And she does it all with only the movement of her eyes, thanks to an assistive device called a Tobii Dynavox I-15.  Catherine acknowledges, “You would think, as a mostly immobile and bedbound person, my life would be uneventful, but you would be wrong.” It’s all part of Catherine’s plan to make the most of every day. “I am living with ALS, not dying from ALS,” she says.

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