Woman who has CMT encourages others by participating on MDA Team Momentum

For Ava Illingsowrth there are no barriers. There are no obstacles. For her, challenges are just opportunities to defy limits. Ava is a runner with the MDA’s Team Momentum, MDA’s endurance training team that helps people train for half or full marathons while supporting kids and adults living with muscular dystrophy. Ava herself is one . . .

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MDA Holiday Gift Guide

Few things are better than the perfect gift — except, perhaps, the gift that gives love to the recipient and to a whole community as well. This season, surprise your family with gifts that give to MDA families — and MDA research — too. Good Reads Stack your family bookshelf with must-reads that help explain . . .

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Five Questions with CMT Researcher Henry Houlden

Henry Houlden, professor of neurology at the MRC Centre for Neuromuscular Diseases, University College London Institute of Neurology in England, was awarded an MDA research grant totaling $288,151 over three years to elucidate the genetic causes of severe forms of Charcot-Marie-Tooth disease (CMT) and other types of early-onset neuropathy. Identification of the causative genes could . . .

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13-Year-Old Author with CMT Made International Headlines with her Petition to American Girl. Now She’s Written a New Book with a Heroine She Can Relate To.

13-year-old Melissa Shang is an activist, an advocate and an author. She’s spoken at the United Nations, given a TedX talk and just published her first book. She is a girl on a mission. And it all started with an American Girl doll named Isabelle. For Melissa, Isabelle was the last straw. Every year, American . . .

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MDA Grants Work to Find Breakthroughs Across Diseases

Since its inception, MDA has invested more than $1 billion in neuromuscular disease research to uncover new treatments and cures. In 2016 alone, MDA awarded 66 new research, development and research infrastructure grants with a total funding commitment of more than $17 million. These and other MDA grants fund research projects designed to uncover the . . .

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