Tag: diagnosis

Kids, Young Adults, Adults, Living with Muscular Dystrophy

What You Need to Know About Finding and Visiting an MDA Care Center

MDA Specialist, Family & Community Support

Located at more than 150 of the top healthcare institutions across the United States, MDA Care Centers serve as the nexus for expert clinical care and medical research. Our Care Center Network offers tens of thousands of appointments each year for individuals living with muscular dystrophy, ALS, and other neuromuscular diseases. These appointments provide individuals . . .

Read More
Personal Stories, Kids, Living with Muscular Dystrophy

Talking About Your Child’s Diagnosis Helps Build Your Support System

Claire Sykes

When Stephanie and Wayne Donato received the diagnosis of Duchenne muscular dystrophy (DMD) for their son Maximus, who was 4 at the time, in 2017, “we were completely blindsided,” Stephanie says. The couple quickly realized there were a lot of people they needed to tell, and they started with their own family. The Donatos also . . .

Read More