Tag: Friendship

Personal Stories, Kids, Young Adults, Summer Camp, Living with Muscular Dystrophy

MDA Summer Camp: Zach’s Note to Younger Self

MDA Staff

MDA Summer Camp has been a favorite tradition for our young community for over 65 years.  For one week every year, children and teens receive the opportunity to gain critical life-skills, including self-confidence, independence, and self-advocacy, while making lifelong friendships in an inclusive and accessible environment. In 2020, in an effort to keep this popular . . .

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Personal Stories, Young Adults, Adults, Living with Muscular Dystrophy

It Helps to Have a Friend Who Understands Your Neuromuscular Disease

Shaila Wunderlich

For the first six months following her amyotrophic lateral sclerosis (ALS) diagnosis, Valerie Geerer’s instinct was to keep the news to herself. “My husband and close family and friends knew, but I didn’t feel comfortable sharing it with co-workers or acquaintances,” she says.  Then she met Dora Sementilli. Like Valerie, Dora was in her 50s . . .

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