Meet Cadence Hometown: Havre, Montana Age: 9 Diagnosis: I have an unspecified myopathy. Myopathies are diseases that cause problems with the tone and contraction of skeletal muscles. Favorite School Subject/Activities: Art, Reading, Rocket Math and Science are my favorite things about school. Favorite People and/or Pets: I love dolphins, including the Miami Dolphins. Although my #1 animal is . . .
I was warned. Yes, upon accepting the invitation to speak at the National Association of Letter Carriers convention in Los Angeles, I was told to prepare myself. Everyone said that NALC members are some of the MDA’s most enthusiastic supporters. And they were right. But I already knew what I was in for. The NALC . . .
Noah Hometown: Cortland, NY Age: 17 Diagnosis: I was diagnosed with Duchenne Muscular Dystrophy (DMD) Favorite School Subjects/Activities: My favorite school subject is history. Favorite People: My favorite people are my parents and my sister Katie. I also love spending time with my grandpa and my cat, Smokey, who is 16 years old. Interests: I like to read and I also . . .
They say “What happens in Vegas stays in Vegas.” But my experience at the 53rd International Association of Fire Fighters convention was too good not to share with you. This wasn’t my first trip to Las Vegas, but it was the first time I found myself in Sin City on business. This trip made me . . .
Pat Loewi’s daughter, Sammy, felt invisible at school. Powering through the halls at her big, urban high school, she was ignored. The kids didn’t look at her. They didn’t smile at her or make eye contact, even when Sammy had her adorable service dog, Annie, by her side. “Kids just looked right past her,” Pat . . .
Earlier this month, in my home state of Colorado, I had the honor of attending the Denver MDA Muscle Walk with some amazing families and individuals. Not only was it great to be back home, it was wonderful meeting so many inspiring groups of people. It never ceases to amaze me how close everyone in . . .
Cohl Hometown: Exeter, NH Age: 9 Diagnosis: I was diagnosed with Spinal Muscular Atrophy, Type 3, at age 8. Spinal Muscular Atrophy (SMA) is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Favorite School Subject/Activities: My favorite subject in school is social studies. Favorite People: My mom, dad, sister, Ava, and cat, Celine . . .
Brayden Hometown: Fairdale, KY Age: 8 Diagnosis: Charcot-Marie Tooth (CMT) Favorite School Subject/Activities: I enjoy Math, GymTyme Cheer, and being in the spotlight. Favorite People and/or Pets: I like Spiderman, Batman, The Flash, and The Arrow. Other people I really like are my mom, dad and brothers, Dylan and Nate. I have two dogs and two cats. Interests: I love . . .
Although I would later come to associate MDA Summer Camp with the words joy, freedom and independence, that’s not how I felt in the beginning. In fact, I was terrified to go. When my mom told me she had signed me up for MDA’s summer camp in Empire, Colorado, I threw a massive temper tantrum . . .
To say that Harley-Davidson and MDA were made for each other doesn’t fully do the relationship justice. But for two organizations that may seem on their surfaces to have little in common, there are a number of uncanny similarities. One of them I continue to be surprised by is the spirit of living unlimited. Harley . . .