Hailey Hometown: Bismarck, ND Age: 16 Diagnosis: In 2001, I was diagnosed with Spinal Muscular Atrophy (SMA) Type 2. I was just 2 years old. SMA is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Favorite School Subject/Activities: When I am in school, I like English & Biology class the . . .
Over the last six months, I’ve had the pleasure of meeting great people all over the country. This week’s trip to Georgia was no exception. The Mansfield Golf Classic is a prime demonstration of the commitment our sponsors have to helping individuals and families living with muscle-debilitating diseases. Mansfield Oil Company’s 30-year partnership with . . .
Kierra Hometown: Waxhaw, NC Age: 11 Diagnosis: Ullrich muscular dystrophy Favorite School Subject/Activities: I enjoy reading, writing and art. Favorite People and/or Pets: I love my parents and big brother, Aidan. I have the most wonderful and supportive friends, teachers and doctors. However, my most favorites are all of the camp counselors from MDA Summer Camp. Interests: I . . .
Hunter Hometown: Burnsville, MN Age: 10 Diagnosis: Charcot-Marie-Tooth Disease (CMT), which causes muscle weakness and atrophy, and some loss of sensation in the feet, the lower legs, the hands and the forearms. Favorite School Subject/Activities: Art and time in the library. Favorite People and/or Pets: I live with my parents, Alan and Dana, and my younger brother Hayden (7). . . .
For more than 35 years, ERA Real Estate has been committed to enriching the lives of children and adults living with Muscular Dystrophy and other neuromuscular diseases through its support of MDA. In particular, the ERA network has been helping kids living with muscular dystrophy, SMA and related muscle-debilitating diseases have “the best week of the . . .
For Cheryle Elliot and her son, Dakota, the Muscular Dystrophy Association is like a part of the family. From selling MDA Shamrocks to attending their local MDA Lock-Up event to participating in Muscle Walk, they do it all — with Dakota smiling and laughing all the way through. Dakota was born with congenital myotonic muscular . . .
Marley Hometown: Mystic, CT Diagnosis: I have Spinal Muscular Atrophy Type 2, and I was diagnosed when I was 1 year old. SMA is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Age: 15 Favorite School Subject/Activities: I am currently a sophomore in high school. My favorite subjects . . .
Devin Hometown: Manitowoc, Wisconsin Diagnosis: Duchenne muscular dystrophy Age: 14 Favorite School Subject/Activities: I really like science and health. Favorite People and/or Pets: I love my family, my dogs and everyone at MDA. Interests: I enjoy drawing cars, watching sports, riding ATVs, making hand-made rainbow loom bracelets and playing video games. My favorite Things About MDA: MDA helps so many people. . . .
Payton Hometown: Cincinnati, Ohio Age: 13 Diagnosis: Congenital Muscular Dystrophy (CMD), a group of muscular dystrophies that become apparent at or near birth. CMD results in overall muscle weakness with possible joint stiffness or looseness. Favorite School Subject/Activities: Reading, writing, and art. Favorite People and/or Pets: I live with my older brother Jacob and my mom, Angela. I also . . .
Ryan Hometown: Naperville, IL Age: 13 Diagnosis: I have Duchenne Muscular Dystrophy, which is caused by an absence of dystrophin, a protein that helps keep muscle cells intact. Favorite School Subject/Activities: My favorite school subjects are PE and Math. Favorite People and/or Pets: Aside from my mom, dad, and sisters, I love the Chicago Blackhawks. Interests: I enjoy going to watch . . .