They say “What happens in Vegas stays in Vegas.” But my experience at the 53rd International Association of Fire Fighters convention was too good not to share with you. This wasn’t my first trip to Las Vegas, but it was the first time I found myself in Sin City on business. This trip made me . . .
Pat Loewi’s daughter, Sammy, felt invisible at school. Powering through the halls at her big, urban high school, she was ignored. The kids didn’t look at her. They didn’t smile at her or make eye contact, even when Sammy had her adorable service dog, Annie, by her side. “Kids just looked right past her,” Pat . . .
Earlier this month, in my home state of Colorado, I had the honor of attending the Denver MDA Muscle Walk with some amazing families and individuals. Not only was it great to be back home, it was wonderful meeting so many inspiring groups of people. It never ceases to amaze me how close everyone in . . .
Cohl Hometown: Exeter, NH Age: 9 Diagnosis: I was diagnosed with Spinal Muscular Atrophy, Type 3, at age 8. Spinal Muscular Atrophy (SMA) is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Favorite School Subject/Activities: My favorite subject in school is social studies. Favorite People: My mom, dad, sister, Ava, and cat, Celine . . .
Brayden Hometown: Fairdale, KY Age: 8 Diagnosis: Charcot-Marie Tooth (CMT) Favorite School Subject/Activities: I enjoy Math, GymTyme Cheer, and being in the spotlight. Favorite People and/or Pets: I like Spiderman, Batman, The Flash, and The Arrow. Other people I really like are my mom, dad and brothers, Dylan and Nate. I have two dogs and two cats. Interests: I love . . .
Although I would later come to associate MDA Summer Camp with the words joy, freedom and independence, that’s not how I felt in the beginning. In fact, I was terrified to go. When my mom told me she had signed me up for MDA’s summer camp in Empire, Colorado, I threw a massive temper tantrum . . .
To say that Harley-Davidson and MDA were made for each other doesn’t fully do the relationship justice. But for two organizations that may seem on their surfaces to have little in common, there are a number of uncanny similarities. One of them I continue to be surprised by is the spirit of living unlimited. Harley . . .
Hailey Hometown: Bismarck, ND Age: 16 Diagnosis: In 2001, I was diagnosed with Spinal Muscular Atrophy (SMA) Type 2. I was just 2 years old. SMA is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Favorite School Subject/Activities: When I am in school, I like English & Biology class the . . .
Over the last six months, I’ve had the pleasure of meeting great people all over the country. This week’s trip to Georgia was no exception. The Mansfield Golf Classic is a prime demonstration of the commitment our sponsors have to helping individuals and families living with muscle-debilitating diseases. Mansfield Oil Company’s 30-year partnership with . . .
Kierra Hometown: Waxhaw, NC Age: 11 Diagnosis: Ullrich muscular dystrophy Favorite School Subject/Activities: I enjoy reading, writing and art. Favorite People and/or Pets: I love my parents and big brother, Aidan. I have the most wonderful and supportive friends, teachers and doctors. However, my most favorites are all of the camp counselors from MDA Summer Camp. Interests: I . . .