Originally published in the Hartford Courant on July 22, 2018. To see the original article, click here. For many years I was consumed by worry and bitterness, thinking I was the only one who was given an unfair lot in life. My body, once athletic and fit, was weakening from the uncompromising progression of an adult-onset neuromuscular disease . . .
The Muscular Dystrophy Association recently awarded an MDA clinical research network grant to Nicholas Johnson, vice chair of research and associate professor of neurology at Virginia Commonwealth University in Richmond, to establish the Limb-Girdle Muscular Dystrophy (LGMD) Clinical Research Network. The investment, totaling $700,000 over two years, supports seven centers with expertise in LGMD research . . .
Whenever Paul Robertson and his Fishing for Muscular Dystrophy (FFMD) team pull into a truck stop, they know it might be a while before they are able to leave. Although there to pump fuel, the caravan of trucks and boats adorned with the FFMD and MDA logos are such a big hit with fellow motorists . . .
Olivia and Steven Sosa are grateful for MDA Muscle Walk, which allows them to raise awareness & funds for MDA families.
In recognition of National Disability Employment Awareness Month, Chris and Sean, who both work for Microsoft and live with MD, share what has helped them succeed in their careers.
Andrew Boychuk, who lives with LGMD, shares the positive impact MDA’s LGMD genetic testing program has made in his life.
The Wood family, whose son George lives w LGMD, has raised thousands of dollars for MDA by cooking jambalaya.
Up and coming designer living with LGMD Tobie Roberts shares how she is tackling the lack of inclusivity in the fashion industry.
Do you or a loved one live with LGMD? Learn more about MDA’s LGMD genetic testing program and find out how to make an impact on LGMD research.
Dr. Marshall Hogarth was awarded an MDA grant to research LGMD2B and Miyoshi myopathy.
