Tag: Neuromuscular Community

Personal Stories, Young Adults, Adults, Living with Muscular Dystrophy

Life at the Intersection of Disability and LGBTQ

Elizabeth Millard

When Elisa Ramos, a 28-year-old Central Valley, California, resident with myasthenia gravis (MG), walks into a restaurant with her partner, she’s keenly aware of the looks. “I already face discrimination and displacement because of my disability,” she says. “My scars, medical equipment, and dragging feet get attention, and being with a female partner amplifies that.” . . .

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Adults, News, Living with Muscular Dystrophy, Advocacy

Ensuring Economic Independence for the Neuromuscular Community

Michael Lewis

Did you know that according to a recent MDA survey, only 21% of adults living with neuromuscular disease are working part or full-time? Many individuals with disabilities have a desire to work but face employment hurdles, including the lack of wraparound support services, inaccessible workplaces, discriminatory wages, and a potential loss of Supplemental Security Income . . .

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