Tag: Wellness

Personal Stories, Young Adults, Adults, Living with Muscular Dystrophy

How to Set Goals for Personal Growth and Wellness

Claire Sykes

When he was 15 years old, Elijah Stacy had a dream: to end Duchenne muscular dystrophy (DMD), the disease that affects him and thousands of other people. So, he decided to start a nonprofit called Destroy Duchenne to support advancing gene-editing and gene-therapy technologies to find a cure for DMD.  To achieve his ambitious goal, . . .

Read More
Living with Muscular Dystrophy

Self-Care for the New Year

Rebecca Hume

When psychotherapist and disability advocate, Lauren Presutti, needs to recenter with a little self-care, she focuses on taking the time to tune into her feelings.  Lauren, who lives with congenital muscular dystrophy (CMD), is an expert in the mental health field and recognizes the value of self-care.  “Remember to acknowledge and express your feelings, whatever . . .

Read More