Heading off to college and wondering how to find a personal care assistant? Megan Crowley, who lives with Pompe disease, shares her tips.
Today, more than 60 buildings and landmarks across the U.S. and Canada will be lit bright green to raise awareness for neuromuscular diseases thanks to Light It Up Green for Muscular Dystrophy.
Hugo Trevino shares insightful observations about the intersectionality of having a disability and accepting your sexual or gender identity — and how having SMA helped him come out and live proudly as a gay man.
Recent high school graduate Abbey Umali, a former MDA National Ambassador who lives with CMT, shares her plans for the future.
When Chris Anselmo, who lives with Miyoishi myopathy, learned that Pete Frates’, the creator of the ALS Ice Bucket Challenge was facing challenges paying his medical bills, he felt compelled to share his story.
Siblings Hugo and Maria Trevino participated in the Chicago Spring Half Marathon and 10K with MDA Team Momentum.
Kate, who lives with SMA type 3 and has directly benefited from, Spinraza, a medication that can trace its root back to MDA, encourages supporters to go the distance for MDA via their local MDA Muscle Walks.
The deafening roar of thousands of motorcycles is music to Julie Harris’s ears. To her, that rumble means one thing: “Hope.” This weekend, the Reading Fairgrounds in Eastern Pennsylvania will be filled with Julie’s favorite sounds. That’s because the 30th Annual MDA Ride for Life is speeding into town.
From MDA Summer Camp to MDA Team Momentum, Robb Valentyn has been volunteering with MDA for ten plus years and doesn’t plan to stop anytime soon.
Almost exactly one year ago, in the spring of 2016, Kade McCann learned he had myotonic dystrophy. For this young athlete, the diagnosis stopped him in his tracks.
