Supporting kids at MDA Summer Camp, Casey’s helps them reach their full potential
Halie, who attended MDA Summer Camp, shares the impact the experience has made on her, thanks in part to sponsors like Casey’s.
Category: Young Adults
Some said living independently was too much to hope for. Joe Akmakjian said “Watch me!”
Some said living independently was too much to hope for. Joe Akmakjian said “Watch me!”
Some said a diploma wasn’t in her future. Latondra Chappell said “Watch me!”
Latondra Chappell is like most teenagers. She drives, goes to prom and is attending college. However, at the age of 11, Latondra was diagnosed with congenital muscular dystrophy, which caused her muscles to break down and lose strength, putting her in a wheelchair. At her local MDA Care Center, Latondra’s doctor pushed her to live . . .
High School Senior With FSHD Walks at Graduation and Inspires the World to Live Unlimited
In an auditorium in Bearden, Arkansas, Doug Haynes was sitting in his wheelchair by the stage, dressed in his graduation robes. The high school senior had waited for this moment for four years. His physical therapist stood in front of him, pushing away the chair’s footrests and grasping the gait belt around Doug’s waist. Sensing . . .
No Mountain Too Tall: Lousiana Girl With Rare Muscle Disease Lives Without Limits
Avery Friedmann was strung into a climbing harness, on top of a 30-foot hunk of rock in the middle of Estes Park, Colorado — and she was upside down. She was also laughing. “So, here I am, hooked up to this giant rock and I’m looking straight down at the ground,” she says of the . . .
The Three P’s of Transitioning from Pediatric to Adult Clinical Care
Think back to when you were 16. It may have been a time of excitement, optimism, awkwardness, and questionable style choices. These feelings during adolescence are universal – and are also experienced by young adults with neuromuscular diseases. Like all teenagers, the youth served by MDA have incredible talents, aspirations and promise. They also . . .
My visit to the CMT clinic at the University of Iowa
A young man with Charcot-Marie-Tooth shares his experience from the CMT clinic in Iowa City.
AFO’s are like buying jeans
Finding the right AFO is like finding the right pair of jeans.
Top Things to Consider When You Move
Make sure you are fully informed while planning your move
Five Tips For a Long and Productive Personal Care Assistant Relationship
Many people with disabilities rely, at some point in our lives, on the services of a Home Health Aide (HHA) or Personal Care Assistant (PCA). And it’s no secret that this is a challenging relationship, both to establish and maintain. Listed below are five tips to help make the process a little easier and successful. . . .
