Money kept in savings accounts pulls double duty: It’s accessible to address urgent, unexpected expenses, and it’s also a key component of a long-term investment strategy. In the face of a sudden job transition or a vehicle breakdown, for example, savings can provide flexibility and resilience. For people living with neuromuscular diseases, “Every day won’t . . .
When Elisa Ramos, a 28-year-old Central Valley, California, resident with myasthenia gravis (MG), walks into a restaurant with her partner, she’s keenly aware of the looks. “I already face discrimination and displacement because of my disability,” she says. “My scars, medical equipment, and dragging feet get attention, and being with a female partner amplifies that.” . . .
Living as an adult with a disability means trusting other people to assist you with daily tasks, some of which are intimate or make you feel vulnerable. How you approach hiring personal care attendants (PCAs) to perform those caregiving tasks is a personal choice. Some people prefer to use a home health agency, which streamlines . . .
As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: “Quest for Success”. Success looks different to everyone and this monthly blog details the different paths that individuals with neuromuscular disease have taken to reach their potential and the steps . . .
Eight years ago, if you were looking for Billy Zureikat you would find him on the basketball court. The 38-year-old, former ESPN producer and current logistics manager’s passion was on the court. That all changed when years of symptoms and eventually a diagnosis in 2021 of limb girdle muscular dystrophy (LGMD) began to impact his . . .
Researchers at the Barrow Neurological Institute (BNI) and Emory University are seeking adults living with amyotrophic lateral sclerosis (ALS) to participate in the Track-ALS research study to assess whether measurements collected at home, using digital applications, are dependable and can help with tracking disease progression. Study participants will be asked to perform various at-home tests at . . .
Ben Schwartz doesn’t let Duchenne muscular dystrophy (DMD) stop him from enjoying the great outdoors. This 9-year-old from Des Moines, Iowa, has wheeled up massive sand dunes at Great Sand Dunes National Park and Preserve in Colorado, strolled paved trails at Guadalupe Mountains National Park in West Texas, and skied down a snowy slope at . . .
Since MDA’s founding in 1950, families have come to know MDA as a critical resource to help locate support and resources. Assistance obtaining durable medical equipment is one of the primary needs that our families encounter. MDA understands that navigating insurance and equipment needs can be difficult, and we are here to help. MDA’s National . . .
Claiming Success: A Q&A about achieving your goals As we use our collective voice to effect change in 2022, the Year of Independence is the perfect time to celebrate individuals in our MDA community who are shattering expectations and forging forward to achieve their goals. The personal story of the Honorable Robert Pipia, a judge in . . .
Building on MDA’s legacy of innovation in research, care, and fundraising, MDA brought families and the community together on March 17th for a Volunteer Tribute Reception in Studio A at the Grand Ole Opry House in Nashville, TN. Declared an official “Day of Recognition” by Tennessee Governor Bill Lee, the celebration honored three local champions with . . .