Recommendation for SMA to be added to RUSP is announced

Today, the Advisory Committee on Heritable Disorders in Newborns and Children voted to recommend to the Secretary of Health and Human Services that spinal muscular atrophy (SMA) be added to the Recommended Uniform Screening Panel (RUSP), the national list that guides states on which diseases should be tested for at birth. Newborn screening is essential . . .

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Join Us for an Accessible Air Travel Webinar with Southwest and Alaska Airlines

Join MDA and representatives from Southwest and Alaska Airlines on Thursday, Aug. 10 at 3 p.m. EDT for an informative conversation about accessible air travel. This webinar is a continuation of MDA’s collaborative accessible air travel efforts as we team up with representatives from the airline industry to discuss traveling with a disability and as we explore ways to help eliminate barriers to access.

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MDA Joins with Nine Patient Advocacy Organizations to Respond to Release of Revised Legislative Draft of Senate Health Care Reform

health care reform

This week, MDA joined with nine other patient advocacy organizations – including American Cancer Society Cancer Action Network, Cystic Fibrosis Foundation, March of Dimes and National Organization for Rare Disorders – to respond to the Senate’s newly-released draft of the Better Care Reconciliation Act (BCRA).

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