Melanie Carson has peered into the Grand Canyon and craned her neck looking up at the giant Redwoods of Northern California. She’s felt the mist of waterfalls in Hawaii and gazed at Yosemite’s Half Dome. She’s done it all, and wants to do more. That’s all while living with a rare type of Limb-girdle muscular . . .
2017 MDA Muscle Walk t-shirt design voting is now live! Now’s your chance to cast your vote for your favorite design for the 2017 MDA Muscle Walk t-shirt! Voting ends midnight on Friday, September 16. Ask your family and friends to vote for their favorite design to help push your selection to the top! The . . .
When I was a junior in high school, my father was diagnosed with ALS. At the time, I didn’t know what it was or what it meant, and Icould hardly imagine that I would make a career working for an organization whose mission is to find treatments and cures for ALS and other related . . .
“November 1, 2011 was the day that everything changed for our family. We were sitting in room with no windows and seemingly no air to breathe and the news came like a bulldozer: Duchenne muscular dystrophy, a muscle wasting disease with no cure that is 100% fatal. I couldn’t believe it. All I wanted to do . . .
Earlier this month, in my home state of Colorado, I had the honor of attending the Denver MDA Muscle Walk with some amazing families and individuals. Not only was it great to be back home, it was wonderful meeting so many inspiring groups of people. It never ceases to amaze me how close everyone in . . .
Editor’s note: The following is adapted from a letter Stephanie Hoover wrote to family and friends to ask them to support her in the Louisville Muscle Walk. We thought her characterization of the impact of her disease and her eloquent description of the community she has found within MDA were worth sharing. We hope you . . .
With both of her sons living with muscular dystrophy, MDA Muscle Walk is personal for Tammy Gregory. “I kind of blamed myself when they were first diagnosed,” Tammy says, explaining that she didn’t know she was a carrier of flawed genes that cause Becker muscular dystrophy (BMD). “I don’t blame myself now, but it’s hard . . .
Thirteen-year-old Dana Parrott has a live unlimited motto, which she faithfully follows. “I may have muscular dystrophy,” she says. “But muscular dystrophy don’t have me!” In so doing, Dana is showing the world that her limits don’t define her. To every doubter and every “you can’t do that,” she says, “watch me.” Diagnosed with limb-girdle muscular dystrophy (LGMD) . . .
Three-year-old Paxton is the tiny, grinning powerhouse that keeps his grandpa, Stuart Horton, going. His smile gets Stuart out of bed every morning and, even though it’s tough for the 53-year-old with Charcot-Marie-Tooth disease to travel, it’s his grandson’s future that motivates Stuart to participate in MDA Muscle Walk this year. “It’s the simple things . . .