In March, as the novel coronavirus spread across the US, we at MDA realized it would be impossible to safely gather our community’s children and teens at MDA Summer Camps this year. But that didn’t mean we had to cancel camp, or its spirit. “We know how much MDA Summer Camp means to our community, . . .
Since 2011, MDA Muscle Walks have been gathering individuals living with muscular dystrophy, ALS, and related neuromuscular diseases with their families, friends, and communities across America. Together, they’ve raised awareness of everyday life with muscle disease — and they’ve raised $49 million to fund expert care and innovative research directed toward delivering cures. This year, . . .
Since 1952, the National Association of Letter Carriers, the nationwide union of US postal delivery workers, has supported MDA as its charity of choice — and raised more than $100 million through local fundraisers that have showcased workers’ creativity and dedication to MDA’s mission of transforming the lives of people living with neuromuscular disease through . . .
Santos “JR” Ortiz hadn’t always dreamed of becoming a fire fighter. He didn’t play on fire trucks as a kid, or even know much about fire departments. But when he was in his late 20s, a friend in the Boston Fire Department started talking about the job, and JR took notice. When that friend dropped . . .
#GivingTuesday, annually held immediately after the Black Friday and Cyber Monday holiday shopping days following Thanksgiving, falls late this year on Dec. 3. But here at MDA, we’re already planning on how we can all join together during this Season of Will to celebrate the loved ones we know impacted by muscular dystrophy, ALS, and . . .
This September, at Casey’s General Stores in 16 states across the Midwest, employees have been doing more than serving guests. They’ve been serving the MDA community, too, inviting store guests to round purchase totals up to the nearest whole dollar to support individuals and families impacted by neuromuscular disease. Now in its 13th year of . . .
For the last four months, Amy Shinneman has been training to do something she never imagined doing: hitting the pavement as a participant in the Bank of America Chicago Marathon. Amy, a 45-year-old Noblesville, Ind., native, lives with Bethlem myopathy, a form of Ullrich congenital muscular dystrophy that causes muscle weakness throughout her limbs. “From . . .
This September, MDA is kicking off 30 Days of Strength, a campaign to raise funds for and awareness of people living with neuromuscular disease. Since the launch of MDA’s annual Labor Day telethon, September has been our most important fundraising period. Across the 30 days of September this year, MDA is sharing stories of the . . .
Reagan Imhoff, 14, is a former MDA National Ambassador (2014-2015) and a current camper at MDA Summer Camp in Wisconsin. Reagan, who lives with spinal muscular atrophy (SMA), thoroughly enjoys MDA Summer Camp, and she was excited to connect with current MDA National Ambassador Faith and share perspectives on what it’s like to stay at . . .
On July 20, there will be burpees, pushups, lunges, and squats. Sweat will bloom on shirts, heartbeats will race, and grins will break out between breaths. This will be business as usual for members of the fitness franchise Burn Boot Camp, but there’s a twist — this time participants will be giving back while getting . . .