Thursday night, June 2, 2022, individuals from the Muscular Dystrophy Association (MDA), along with local volunteers, MDA families and MDA partners descended on Hotel ZaZa in Memorial City, Houston, Texas for what was truly a magical night. The evening consisted of a never-ending photo-op station, lots of conversation and reconnecting with friends, food AND the . . .
The Muscular Dystrophy Association, and the neuromuscular disease community has been a part of my extended family my entire life. And so today, on one of the biggest days of my life, it felt right to celebrate with all of you. I started writing when I was about eight years old. Mostly fiction, I loved . . .
The relationships we at MDA form with our community is one of the most rewarding parts of our mission. One such relationship is our friendship with Jon Burcaw and his son Shane. As a long-time supporter of Schaeffer’s Harley-Davidson – a member of the Eastern Harley-Davidson Dealership Association (EHDDA) – Jon became a supporter of . . .
MDA’s Ambassadors are pivotal to our mission: empowering people living with muscular dystrophy, ALS, and related neuromuscular diseases to achieve their potential. We do that through care, research, and advocacy. Because the mission is big, we need big partners who can help evangelize what MDA is, what we do, and, most importantly, who we do it for. Enter, . . .