An expression of the live unlimited spirit, stories and voices of the MDA community

An MDA Summer Camp Love Story

Looking back, neither one of us went to camp expecting to meet the person we’d one day marry. … I can’t imagine my life without Zach. We can’t imagine our lives without our camp family or MDA Summer Camp.

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Marathon Pharmaceuticals Pauses Commercialization of EMFLAZA to Address Concerns of Duchenne Community

Today, Marathon Pharmaceuticals, maker of the recently FDA-approved drug EMFLAZA, announced that they are pausing commercialization efforts in order to address the concerns about price and access to the drug from the Duchenne muscular dystrophy community. MDA will update our community with more information as it becomes available. We remain committed to ensuring that our families have the resources and assistance to begin and maintain treatments with emerging therapies for neuromuscular diseases.

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