Strongly


An expression of the live unlimited spirit, stories and voices of the MDA community

Do You Know ALS? Meet Anthony, Alicia, and Erin.

Team Momentum is a team of runners who dedicate their miles to help our community raise critical dollars that help MDA fund research breakthroughs and provide families living with muscle disease support and services. During ALS Awareness Month 2019, we are highlighting three Team Momentum runners — Anthony Accorsi, Alicia Martin, and Erin Westphal — . . .

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Do You Know ALS? Meet Pat.

Pat Quinn, co-founder of the ALS Association’s Ice Bucket Challenge, has been advocating for ALS awareness, treatments and a cure since his diagnosis with amyotrophic lateral sclerosis (ALS) in 2013. In 2017, Pat received the Wings Over Wall Street Spirit Award, given to a person who has demonstrated extraordinary commitment and dedication to the eradication . . .

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Do You Know ALS? Meet John.

John Schwall, chief operating officer and co-founder of IEX, shares a personal connection in the fight against amyotrophic lateral sclerosis (ALS) as his mother suffered a six-year battle with the disease and later passed from complications related to ALS in 2008. John became an MDA supporter and has played a major role in the success . . .

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Do You Know ALS? Meet Warren.

From the time of his wife’s amyotrophic lateral sclerosis (ALS) diagnosis in 2000, Warren Schiffer and his wife, Toni Diamond, dedicated themselves to raising funds to find a cure. The couple founded Wings Over Wall Street and with the support of MDA have been able to host this annual event to raise awareness and money . . .

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Do You Know ALS? Read About the Latest Research.

It’s a hard fact that only three medications have been approved to treat amyotrophic lateral sclerosis (ALS) in nearly 25 years. Fortunately, research in ALS has exploded in the past decade, and new technologies have enabled the development of gene-targeting therapies such as gene replacement, gene silencing, and gene editing. MDA has always been committed . . .

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Do You Know ALS? Meet Peter.

In 2015, Peter Warlick was diagnosed with amyotrophic lateral sclerosis (ALS). Despite the progression of the disease, Peter continues to be a dedicated father, husband, and American Airlines employee. Peter chose to make a difference for others and the future of ALS. He gathered a team, Warlick’s Warriors, and has raised more than $5 million . . .

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Do You Know ALS? Meet Sandy.

In 2018, Sandy Morris, wife and mother of three, was diagnosed with amyotrophic lateral sclerosis (ALS) at the age of 51. Sandy is a passionate advocate for ALS research who aspires to make ALS a priority on this planet with the help of MDA and I am ALS. She has a powerful support group in . . .

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2019 MDA Engage ALS Symposium Scheduled in Boston on May 18

At MDA, we believe in the power of research and the importance of building relationships among families, clinicians, and the scientists making discoveries to advance treatments and therapies. We invite individuals living with a neuromuscular disease, as well as caregivers and loved ones, to attend MDA Engage symposia taking place across the country. MDA Engage . . .

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FDA Approves Jacobus Pharmaceuticals’ Ruzurgi for Treatment of Children with Lambert-Eaton Myasthenic Syndrome

On May 6, the U.S. Food and Drug Administration (FDA) announced the approval of Ruzurgi (amifampridine) for the treatment of children with Lambert-Eaton myasthenic syndrome (LEMS) who are between 6 and 17 years of age. This is the second FDA-approved treatment for LEMS and the first approved treatment for pediatric LEMS patients. Ruzurgi is an oral potassium . . .

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