Elizabethtown College Seeks Young Adults With CMT for Survey About Social Life

Young adults living with Charcot-Marie-Tooth disease: You can help in a new study. Allison Eveler, a senior occupational therapy major at Elizabethtown College in Pennsylvania, is conducting an undergraduate research study to determine the impacts of CMT on the social participation of young adults. Allison, who herself lives with CMT, recognized a need for research . . .

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#Goals: Plan 2019 With MDA

January is a natural goal-setting time. The new year and its fresh calendar to fill out prompt a re-evaluation of how you want to spend your time and your resources. As you’re mapping out your 2019, MDA can fit into your fitness, financial and philanthropic goals — there’s an opportunity for every interest. Volunteer with . . .

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Planned Giving: A Different Kind of Donation

On Dec. 23, 2018, the MDA office of Minnesota and the Dakotas received its biggest gift ever — and it came as a surprise from one man who felt connected to MDA’s mission. Steven Williams, a native of Clarkfield, Minn. and a Vietnam War veteran, graduated from college in the mid-1970s with a degree in . . .

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For Lainie Ishbia, CMT and Personal Style Aren’t Mutually Exclusive

Growing up with Charcot-Marie-Tooth disease (CMT), Lainie Ishbia learned about living with invisible disability — experiencing the daily struggle of movement without looking, outwardly and obviously, as if that’s the case. She also learned, once ankle-foot orthotics (AFOs, or braces) made her disability visible, those devices designed to help make movement easier can also make . . .

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Scenes from MDA’s #RideForStrength and Harley-Davidson’s 115th Anniversary Parade

On Labor Day weekend, Harley-Davidson and the Muscular Dystrophy Association hit the streets of Milwaukee to celebrate Harley’s 115th anniversary — and the 38-year partnership between the iconic American motorcycle maker and MDA. Thousands of riders and bikes convened for Harley’s celebratory 115th Anniversary Parade on Sept. 2. Within the parade was MDA’s Parade of . . .

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On May 11, Drink One for Dane

On May 11, your daily cup of coffee can boost more than your energy — it can also bolster MDA’s quest to end ALS. For 12 years, Dutch Bros. Coffee has supported MDA through Drink One for Dane Day, a fundraiser launched in 2007 in honor of Dutch Bros. co-founder Dane Boersma, who was diagnosed . . .

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