On Sunday, Nov. 4, chef Dan Churchill crossed the finish line for MDA. The Australian-born, New York-based chef tackled 26 miles in the TCS New York City Marathon representing MDA’s Team Momentum. “This is genuinely a very big privilege and honor for me, on a personal level and giving back,” Dan says. “[The marathon] is . . .
Growing up with Charcot-Marie-Tooth disease (CMT), Lainie Ishbia learned about living with invisible disability — experiencing the daily struggle of movement without looking, outwardly and obviously, as if that’s the case. She also learned, once ankle-foot orthotics (AFOs, or braces) made her disability visible, those devices designed to help make movement easier can also make . . .
Patrick Cusick’s journey with MDA — and with muscular dystrophy — started 12 years ago, in, of all places, a life insurance office. Twenty-nine at the time, the Ohio native and his wife were expecting their first child, and making preparations as parents (or soon-to-be parents) do. Securing life insurance meant taking some medical tests; . . .
On Labor Day weekend, Harley-Davidson and the Muscular Dystrophy Association hit the streets of Milwaukee to celebrate Harley’s 115th anniversary — and the 38-year partnership between the iconic American motorcycle maker and MDA. Thousands of riders and bikes convened for Harley’s celebratory 115th Anniversary Parade on Sept. 2. Within the parade was MDA’s Parade of . . .
At 22, when I graduated from college, I, like so many of my fellow millennials, moved back home. I spent two transitional years in the room where I’d grown up, unicorn wallpaper still casting magic above the bed, and then, one weekend, I packed my clothes and moved out. I’d lived alone in my college . . .
On May 11, your daily cup of coffee can boost more than your energy — it can also bolster MDA’s quest to end ALS. For 12 years, Dutch Bros. Coffee has supported MDA through Drink One for Dane Day, a fundraiser launched in 2007 in honor of Dutch Bros. co-founder Dane Boersma, who was diagnosed . . .
Ches Hutchinson began his MDA volunteer journey with a long walk.
In 2011, a coworker whose son attended the Minnesota MDA Summer Camp reached out to Ches. The camp was in need of volunteers — specifically men — and Ches’ little brother had just graduated from high school. Might he be interested, Ches’ coworker asked?
In March, as Daytona Bike Week 2018 neared, Patty Dietering, human resource executive team leader for the Port Orange, Fla., Target, gathered her teams. Their mission: partner with MDA and Harley-Davidson Motor Co. to raise awareness of MDA and fundraise to continue the fight to end muscular dystrophy, ALS and related life-threatening diseases. Patty manages all volunteer activity for her Target store; in 2017, her team contributed 2,218 hours of volunteer service toward multiple agencies…
From April 16 to 20, we’re celebrating National Volunteer Week! We’re so thankful for our MDA volunteers who give of their time and talents to help families with muscular dystrophy, ALS and related diseases. If you’re an MDA volunteer, consider this your virtual hug from us! If you’d like to become a volunteer, we’d love . . .