When I was 25, I took an unlikely job as an editor at a travel magazine. As a journalism graduate, the editing part of the job was a natural fit; as someone who’d never flown on a plane, the traveling part seemed a little daunting. I’d been diagnosed with Charcot-Marie-Tooth disease six years prior, but . . .
Few things are better than the perfect gift — except, perhaps, the gift that gives love to the recipient and to a whole community as well. This season, surprise your family with gifts that give to MDA families — and MDA research — too. Good Reads Stack your family bookshelf with must-reads that help explain . . .
September is Charcot-Marie-Tooth Awareness Month. And this month — this year — I’ve never been more aware of CMT. I was diagnosed when I was 19, after a series of falls and half a semester of college note-taking during which I suddenly couldn’t hold a pen. I couldn’t tie my shoes. I struggled with buttons. . . .
Paul Robertson can tell you how falling down can change the course of your life, twice—for worse and for better. For many years, he experienced a series of trips and stumbles, small difficulties getting around and a propensity to catch his feet and toes. His sister Nicole, 11 years younger, had similar tendencies. Maybe they . . .