MDA Releases New Guide for Caregivers

Today, MDA, supported by grants from VieMed Healthcare and SYNERGY HomeCare, has released the MDA Guide for Caregivers, a comprehensive resource to empower individuals living with neuromuscular disease and their caregivers. The guide provides practical advice, recommendations, tips and resources to maximize quality of life, drawing on the expertise of numerous MDA Care Center staff. . . .

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Daniel Buford Leads Fellow Fire Fighters in Filling the Boot — and Then Some

In 2017, the Bryan, Texas, fire department raised a personal record of $42,000 Filling the Boot for MDA. But fundraising is just one of many ways the Bryan fire fighters have positively impacted the lives of MDA families. Their commitment to MDA, which goes back more than 30 years, has expanded significantly since Daniel Buford joined the department five years ago. Daniel, who is the president of IAFF Local 1204 in Bryan, has reinvigorated the fire department’s volunteer efforts and found news ways to engage with the local MDA community…

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Through MDA Muscle Walk, Mike Wernet Gives Back

If you have ever participated in an MDA Muscle Walk event in Southern California, chances are you have encountered Mike Wernet of San Juan Capistrano. The retired auto mechanic is a mainstay at Muscle Walks throughout the region, having been inspired to volunteer ever since being diagnosed with mitochondrial myopathy in 1996 at the age of 46. Now 67, Mike and his family participate in as many as four walks per year. He has found it a great way to give back to an organization that has played an integral role in not just his own life but also the lives of others…

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Hope is Here: MDA Blogger Chris Anselmo Recaps Our 2018 Clinical Conference

Last week, I had the opportunity to attend the 2018 MDA Clinical Conference in Arlington, Va., to write about it from the patient’s perspective. I am always excited to attend conferences that bring together stakeholders in the neuromuscular disease community. I love meeting fellow patients, and I especially love learning about the latest scientific and . . .

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