Space Anthropologist Keirsten Snover Encourages Others to Pursue Scientific Passions

For space anthropologist Keirsten Snover, living unlimited means going where no man or woman has gone before. “As far back as I can remember, I always loved science,” Keirsten says. “I have always been fascinated by all the different fields.” Keirsten has mitochondrial myopathy. As a result of the disease’s progression, she uses a wheelchair . . .

Read More

Owen’s Becker Muscular Dystrophy Story | MDA South Dakota Ambassador

Owen Prenger of Brandon, S.D., is the embodiment of the MDA’s “Live Unlimited” motto. The active 10-year-old has numerous passions and interests. Above all, he loves to learn and is in the gifted education program in his fourth-grade class. Outside of school, he loves to play Minecraft, his favorite video game, and watch football, especially his . . .

Read More

Ethan Lybrand, MDA Summer Camp, and His Wheelchair Named “Bumblebee”

Ethan Lybrand loves his Bumblebee. On Oct. 27, the 7-year-old became the proud owner of his first power wheelchair. Black and yellow, the chair’s color scheme is inspired by, and named after, his favorite Transformers character, Bumblebee. For Ethan, who has Duchenne muscular dystrophy, getting a wheelchair could have been a tough transition. Instead, Ethan . . .

Read More

Why We Love Our MDA Community

When Jayden Long learned four years ago that the firefighters in his hometown of Nampa, Idaho, had to work on Christmas, he devised a plan. “He wanted to deliver baked goods to the firefighters on Christmas day,” recalled his mother, Shellie. “So we baked just about all night and delivered trays of food to three . . .

Read More

Laughter is the Best Medicine

Earlier this Spring, I had the honor of taking part in the 3rd annual Strength, Science and Stories of Inspiration event at the Harvard Science Center in Cambridge, Massachusetts. As a patient with dysferlinopathy (a form of muscular dystrophy), I was heartened to see every seat in the 500-person auditorium filled to support the mission of finding . . .

Read More