Justin Moy’s future is brimming with potential. The 17-year-old Concord, Mass., native is currently a senior at Concord-Carlisle High School, where he enjoys science and participating in the school choir. Although he hasn’t yet figured out what college he’s going to attend, he knows what he wants to do once he gets there. “I want . . .
When Don and Leeann Fortenberry of Waco, Texas, learned their daughter Faith had spinal muscular atrophy (SMA) type 2, they were motivated to take action. Although the diagnosis came as a shock, Don and Leeann were determined to give Faith the best life possible while doing everything in their power to raise awareness for those . . .
Monkol Lek, a researcher at Massachusetts General Hospital and the Broad Institute, both lives with and studies limb girdle muscular dystrophy. He received a research grant from MDA to improve the diagnosis of rare muscle diseases, and this fall he will open his own lab at Yale.
Towering 19,000+ feet over the African countryside, Mt. Kilimanjaro is one of the world’s most daunting peaks. For 26-year-old Jared King of New York City, climbing the mountain is a worthwhile challenge to undertake and represents the fulfillment of two longtime personal goals.
When Chris Anselmo, who lives with Miyoishi myopathy, learned that Pete Frates’, the creator of the ALS Ice Bucket Challenge was facing challenges paying his medical bills, he felt compelled to share his story.