Do You Know ALS? Meet Jim.

In 2015, Karen Condron was honored with MDA’s prestigious Wings Over Wall Street Spirit Award in recognition of her passion for life — while fighting amyotrophic lateral sclerosis (ALS). It was a battle she fought with grace for eight years, until her passing last July. For years, Karen’s spirit —the namesake of the award — . . .

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Do You Know ALS? Meet Anthony, Alicia, and Erin.

Team Momentum is a team of runners who dedicate their miles to help our community raise critical dollars that help MDA fund research breakthroughs and provide families living with muscle disease support and services. During ALS Awareness Month 2019, we are highlighting three Team Momentum runners — Anthony Accorsi, Alicia Martin, and Erin Westphal — . . .

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Do You Know ALS? Meet Pat.

Pat Quinn, co-founder of the ALS Association’s Ice Bucket Challenge, has been advocating for ALS awareness, treatments and a cure since his diagnosis with amyotrophic lateral sclerosis (ALS) in 2013. In 2017, Pat received the Wings Over Wall Street Spirit Award, given to a person who has demonstrated extraordinary commitment and dedication to the eradication . . .

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Do You Know ALS? Meet John.

John Schwall, chief operating officer and co-founder of IEX, shares a personal connection in the fight against amyotrophic lateral sclerosis (ALS) as his mother suffered a six-year battle with the disease and later passed from complications related to ALS in 2008. John became an MDA supporter and has played a major role in the success . . .

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Do You Know ALS? Meet Warren.

From the time of his wife’s amyotrophic lateral sclerosis (ALS) diagnosis in 2000, Warren Schiffer and his wife, Toni Diamond, dedicated themselves to raising funds to find a cure. The couple founded Wings Over Wall Street and with the support of MDA have been able to host this annual event to raise awareness and money . . .

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Do You Know ALS? Meet Peter.

In 2015, Peter Warlick was diagnosed with amyotrophic lateral sclerosis (ALS). Despite the progression of the disease, Peter continues to be a dedicated father, husband, and American Airlines employee. Peter chose to make a difference for others and the future of ALS. He gathered a team, Warlick’s Warriors, and has raised more than $5 million . . .

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Do You Know ALS? Meet Sandy.

In 2018, Sandy Morris, wife and mother of three, was diagnosed with amyotrophic lateral sclerosis (ALS) at the age of 51. Sandy is a passionate advocate for ALS research who aspires to make ALS a priority on this planet with the help of MDA and I am ALS. She has a powerful support group in . . .

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MDA Wins 2019 Sonia Skarlatos Public Service Award

We are pleased to announce that on May 1, 2019, the American Society for Gene and Cell Therapy awarded MDA the Sonia Skarlatos Public Service Award for 2019. Named for its inaugural co-recipient and tireless gene therapy advocate, the ASGCT’s Sonia Skarlatos Public Service Award recognizes a person or group that has consistently fostered and . . .

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Progress in Motion: MDA’s 2019 Clinical & Scientific Conference Heralds New Directions for Neuromuscular Disease Treatment

In April, MDA held its first ever combined Clinical & Scientific Conference, themed “Progress in Motion,” in Orlando Fla. Clinicians, scientists, policymakers, nonprofit, and industry leaders convened for a dynamic and informative five days in Orlando, Fla. With more than 1,200 attendees, 23 sessions, 136 presentations, and 300 posters, this was MDA’s largest conference ever. . . .

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Read the New MDA Manifesto

Not long ago, supportive care and mobility aids were all medical science could offer people living with neuromuscular disease. But the treatment and care landscapes have begun to change dramatically. Recent breakthroughs in genetic medicine, along with other discoveries, are accelerating the development of new therapies, including some that not just address symptoms but also . . .

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