The Big Heart Hero

The Big Heart Hero

Stacy Coleman wrote “The Big Heart Hero,” a short children’s story, to inspire her two young sons Hayden and Mason, who live with Charcot-Marie-Tooth (CMT), and others to find strength in every day moments and to never give up on what you want to become. Stacy, who also lives with CMT, and her family are active in the MDA community in Texas.

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Sharing is Caring: Why the Krieger Family Walks

Muscle Walk

Bryant and Sarah Krieger’s son Fritz was diagnosed with Duchenne muscular dystrophy in February of this year. Less than a month later, their family, along with dozens of other supporters, were walking to bring strength to life at the Muscle Walk of Phoenix as part of Team Fritz & Friends. Here, on Fritz’s first birthday, Sarah allows us a glimpse inside her thoughts by sharing these emotional and moving entries from her journal.

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Boy with juvenile dermatomyositis scores a touchdown

For more than 60 years, firefighters have teamed with MDA to fight back against muscular dystrophy, ALS and related life-threatening diseases.

For one firefighter, the cause became very personal when his son, Chandler Mallen, was diagnosed with juvenile dermatomyositis, a neuromuscular disease that involves inflammation of the muscles. When Chandler asked his father — Scott, a firefighter who has collected donations for MDA’s Fill the Boot program for almost 25 years — if he’d lose the use of his legs, he didn’t wait for an answer.

“Even if I do,” Chandler said, “I’ll never stop trying.”

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