The National Limb Girdle Muscular Dystrophy Conference, scheduled Aug. 30 to Sept. 2 at the Hyatt Regency in Chicago, will highlight all forms of limb-girdle muscular dystrophy (LGMD) in a gathering of researchers, neurologists, biotechs, and patients.
A project and program of The Speak Foundation, a nonprofit focused on improving the quality of life for those living with disabilities, the Limb Girdle Muscular Dystrophy Conference will include presentations on new developments and clinical opportunities in LGMD, including the latest advancements in gene therapy.
MDA’s own Market Intelligence Manager Christopher Anselmo, who lives with a form of LGMD, will be part of a panel focused on young adults living with LGMD. MDA’s interim Head of Research Lianna Orlando will give an update on LGMD programs that MDA is supporting, including the GRASP LGMD Consortium/Clinical research network, genetic testing options available through the Broad Institute’s Rare Genomes Project, and MDA’s enhanced registry, the MOVR Data Hub.
Conference leaders include Carol Abraham, founder of Limb Girdle Muscular Dystrophy Awareness Day; Dr. Brad Williams, Jain Foundation Scientific Advisory Board member; and Kathryn Bryant, founder and national director of the Speak Foundation. MDA is proud to be one of the sponsors of the National Limb Girdle Muscular Dystrophy Conference alongside diamond sponsor Sarepta Therapeutics.
For more information and to register, visit the conference website.