An expression of the live unlimited spirit, stories and voices of the MDA community
In March 2016, experts in the ALS community gathered at the ALS Clinical Trials Guidelines 2016 Workshop, supported in part by MDA. With the aim of improving the testing process for experimental therapies to treat ALS, a multinational group that included neurologists, basic scientists, statisticians, patient advocates, representatives from the pharmaceutical industry, regulatory agencies and . . .
Halie, who attended MDA Summer Camp, shares the impact the experience has made on her, thanks in part to sponsors like Casey’s.
This summer, as thousands of you joined our #LiveUnlimited campaign… With your support, the urgent work we do continues every day. In the coming months, the thousands of dollars raised during the #LiveUnlimited campaign will help MDA fund more new initiatives such as… And there’s much more in the works. Led by MDA families living . . .
For nearly 25 years, Plano Fire Captain Scott Mallen has taken part in the MDA Fill the Boot campaign — a program in which fire fighters in hometowns across America take to the streets to fill their boots with donations and raise funds to help kids and adults with muscular dystrophy live longer and grow . . .
Longtime MDA partner Acosta Sales & Marketing has been committed to helping families live unlimited for more than two decades ago through MDA’s Aisles of Smiles program. The program began as the brainchild of Hank Lautrup, a food broker employed by Southern California-based Kelley-Clarke Inc. At the time, Lautrup’s son had been recently diagnosed with . . .
PTC Therapeutics announced today that it recently has submitted an appeal to escalate continuing discussions with the U.S. Food and Drug Administration (FDA) about a path toward approval in the United States for Translarna to treat some forms of Duchenne muscular dystrophy (DMD). PTC completed submission of its New Drug Application (NDA) to market Translarna . . .
Some said living independently was too much to hope for. Joe Akmakjian said “Watch me!”
The distinctive sound of a Harley-Davidson motorcycle is widely recognized and loved by many MDA Summer Camp campers and counselors. For them, that sound is synonymous with freedom and that’s because of the ongoing support and commitment of Harley-Davidson and their dealer network or dealers. In 2015 alone, more than 59 Harley Owners Group (H.O.G.) . . .
For companies like Casey’s, supporting their community and giving back is not only part of their mission, but it also helps define them as a company. Over the past nine years, Casey’s has supported MDA and the MDA Summer Camp program by raising more than $6.6 million. Their support has helped kids with muscular dystrophy . . .
Latondra Chappell is like most teenagers. She drives, goes to prom and is attending college. However, at the age of 11, Latondra was diagnosed with congenital muscular dystrophy, which caused her muscles to break down and lose strength, putting her in a wheelchair. At her local MDA Care Center, Latondra’s doctor pushed her to live . . .
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