Tag: awareness

Personal Stories, Kids, Young Adults, Adults, Research, Living with Muscular Dystrophy, Advocacy

Life-Saving PJ’s Protocol Was Inspired by a Person With DMD

Claire Sykes

At Daytona International Speedway, if you see a silver wheelchair-accessible minivan flash by outside the stadium, it’s shuttling people who need assistance getting around the expansive venue. Philip James “PJ” Nicholoff would be happy knowing that his family donated his beloved van to the speedway, and its back windows display signage honoring him. A big . . .

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Volunteering, MDA Ambassadors

The MDA Ambassador Role & How to Become One

MDA Specialist, Family & Community Support

MDA Ambassadors are individuals affected by neuromuscular disease who share their story and help raise awareness, thus broadening the impact we make and bringing visibility to our mission. Beginning in the early 1950s, when public awareness and understanding of muscular dystrophy and related diseases were almost non-existent, MDA put a human face on its mission . . .

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