Tag: LGMD Awareness Day

Personal Stories, MDA Ambassadors, Living with Muscular Dystrophy

On World FSHD Awareness Day 2020, MDA National Ambassador Tana Zwart Asks Us to Share Our Truths

Tana Zwart

“For any story of changing the world is always the story of many.” — Judith Heumann Tomorrow, June 20, is World FSHD Awareness Day, dedicated to facioscapulohumeral muscular dystrophy, a disease that etched itself into my DNA and, since I was 7, completely changed the trajectory of my life. Next month, on July 26, the . . .

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Personal Stories, Living with Muscular Dystrophy, Advocacy

For Karen Cole, LGMD Advocacy Began With a Diagnosis 20 Years in the Making

Chris Anselmo

Every year on Sept. 30, people around the world wear lime green and come together online and in their communities to celebrate Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day. Now four years old, LGMD Awareness Day has been embraced by the LGMD patient community as a way to raise awareness and honor individuals living with the . . .

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