Research Study Alert: Track-ALS Study of Home-Based Digital Monitoring to Assess ALS Progression

Researchers at the Barrow Neurological Institute (BNI) and Emory University are seeking adults living with amyotrophic lateral sclerosis (ALS) to participate in the Track-ALS research study to assess whether measurements collected at home, using digital applications, are dependable and can help with tracking disease progression. Study participants will be asked to perform various at-home tests at . . .

Read More

Research Study Alert: Survey for People with Muscular Dystrophy and Their Caregivers about Quality of Life

Researchers at Goldsmiths University of London are seeking people living with muscular dystrophy (MD) and their primary caregivers to participate in a survey about their quality of life. The aim of the survey is to better understand how quality of life of an individual and their primary caregiver is affected by progressing MD. In this study, . . .

Read More