Bill Weis, a long time MDA supporter, recently met Robbie Ivey, a young man with DMD. Together, they used smart speakers and voice automation to outfit his bedroom and help this young man live unlimited.
On August 17, Bryan Steward will begin his hike on the 500-mile Camino de Santiago in Northern Spain. What makes his trip special is that Bryan lives with Becker muscular dystrophy, and he’s undertaking this arduous trek because he knows he may not be able to someday soon. He’s also following in the steps of other MDA supporters, Justin Skeesuck and Patrick Gray, who also hiked the Camino and will be sharing their story with the world this fall in the film I’ll Push You, benefiting MDA.
Hugo Trevino shares insightful observations about the intersectionality of having a disability and accepting your sexual or gender identity — and how having SMA helped him come out and live proudly as a gay man.