On August 17, Bryan Steward will begin his hike on the 500-mile Camino de Santiago in Northern Spain. What makes his trip special is that Bryan lives with Becker muscular dystrophy, and he’s undertaking this arduous trek because he knows he may not be able to someday soon. He’s also following in the steps of other MDA supporters, Justin Skeesuck and Patrick Gray, who also hiked the Camino and will be sharing their story with the world this fall in the film I’ll Push You, benefiting MDA.
Hugo Trevino shares insightful observations about the intersectionality of having a disability and accepting your sexual or gender identity — and how having SMA helped him come out and live proudly as a gay man.
When Chris Anselmo, who lives with Miyoishi myopathy, learned that Pete Frates’, the creator of the ALS Ice Bucket Challenge was facing challenges paying his medical bills, he felt compelled to share his story.
Kate, who lives with SMA type 3 and has directly benefited from, Spinraza, a medication that can trace its root back to MDA, encourages supporters to go the distance for MDA via their local MDA Muscle Walks.